Dignity in the terminally ill: a cross-sectional, cohort study.

https://arctichealth.org/en/permalink/ahliterature187218
Source
Lancet. 2002 Dec 21-28;360(9350):2026-30
Publication Type
Article
Author
Harvey Max Chochinov
Thomas Hack
Thomas Hassard
Linda J Kristjanson
Susan McClement
Mike Harlos
Author Affiliation
Department of Psychiatry, University of Manitoba, Winnipeg, Canada. chochin@cc.UManitoba.CA
Source
Lancet. 2002 Dec 21-28;360(9350):2026-30
Language
English
Publication Type
Article
Keywords
Activities of Daily Living
Aged
Cohort Studies
Cross-Sectional Studies
Educational Status
Female
Humans
Male
Manitoba
Neoplasms
Palliative Care
Quality of Life
Questionnaires
Right to Die
Abstract
Considerations of dignity are often raised in reference to the care of dying patients. However, little research that addresses this issue has been done. Our aim was to identify the extent to which dying patients perceive they are able to maintain a sense of dignity, and to ascertain how demographic and disease-specific variables relate to the issue of dignity in these individuals.
We did a cross-sectional study of a cohort of terminally ill patients with cancer, who had a life expectancy of less than 6 months. We enrolled 213 patients from two palliative care units in Winnipeg, Canada, and asked them to rate their sense of dignity. Our main outcome measures included: a 7-point sense of dignity item; the symptom distress scale; the McGill pain questionnaire; the index of independence in activities of daily living (IADL); a quality of life scale; a brief battery of self-report measures, including screening for desire for death, anxiety, hopelessness, and will to live; burden to others; and requirement for social support.
16 of 213 patients (7.5%; 95% CI 4-11) indicated that loss of dignity was a great concern. These patients were far more than likely than the rest of the cohort to report psychological distress and symptom distress, heightened dependency needs, and loss of will to live.
Loss of dignity is closely associated with certain types of distress often seen among the terminally ill. Preservation of dignity should be an overall aim of treatment and care in patients who are nearing death.
Notes
Comment In: Lancet. 2002 Dec 21-28;360(9350):1997-812504390
Comment In: Lancet. 2003 Mar 1;361(9359):78312620760
PubMed ID
12504398 View in PubMed
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