Department of Clinical Neuroscience and Rehabilitation Medicine, Sahlgrenska Academy, University of Gothenburg, Institute of Neuroscience and Physiology, , 413 45 Göteborg, Sweden. email@example.com.
To describe self-reported activity using the Haemophilia Activity List (HAL) for Swedish adults with haemophilia and to detect any changes over time.
The HAL was sent to the adult population with haemophilia A and B, moderate and severe form, living in Sweden (n?=?260). Participants completed the HAL and a questionnaire on sociodemographic and medical information. From a previous study cohort, 61 persons had responded twice to the HAL. The investigated group was divided into early and later treatment onset groups with regard to access to medication.
The response rate was 50%. There was a significant difference (p?