Congenital heart defects (CHD) constitute the largest group of congenital defects with a prevalence at birth of 5-11 per 1000 live births, and the population of adults with CHD is increasing. However, few population-based long-term outcome data exist.
The Danish Register of Congenital Heart Disease holds data on patients diagnosed with CHD since 1963 and patients below 25 years of age with other types of heart disease.
Overall and defect specific validation is ongoing.
Together with other Danish registers, the Danish Register of Congenital Heart Disease provides extensive research possibilities.