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Norway's ICT Accessibility Legislation, Methods and Indicators.

https://arctichealth.org/en/permalink/ahliterature291059
Source
Stud Health Technol Inform. 2016; 229:471-81
Publication Type
Journal Article
Date
2016
Author
Malin Rygg
Dagfinn Rømen
Brynhild Runa Sterri
Author Affiliation
Norwegian Authority for Universal Design of ICT, Agency for Public Management and eGovernment (Difi), Norway.
Source
Stud Health Technol Inform. 2016; 229:471-81
Date
2016
Language
English
Publication Type
Journal Article
Keywords
Access to Information - legislation & jurisprudence
Communication
Information Technology - legislation & jurisprudence
Norway
Abstract
This paper gives an overview of the Norwegian legislation on Universal Design of information and communication technology (ICT) and how the Norwegian Authority for Universal Design of ICT works to enforce and achieve the goals behind the legislation. The Authority uses indicators to check websites for compliance with the regulations. This paper describes the rationale and intended use for the indicators and how they are used for both supervision and benchmarks as well as a way of gathering data to give an overview of the current state of Universal Design of websites in Norway.
PubMed ID
27534342 View in PubMed
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A nation's genes for a cure to cancer: evolving ethical, social and legal issues regarding population genetic databases.

https://arctichealth.org/en/permalink/ahliterature81982
Source
Columbia J Law Soc Probl. 2004;37(3):359-411
Publication Type
Article
Date
2004
Author
Hsieh Alice
Author Affiliation
Columbia Journal of Law and Social Problems, Columbia University, USA.
Source
Columbia J Law Soc Probl. 2004;37(3):359-411
Date
2004
Language
English
Publication Type
Article
Keywords
Access to Information - legislation & jurisprudence
Biological Specimen Banks - legislation & jurisprudence
Confidentiality - legislation & jurisprudence
Databases, Genetic - ethics - legislation & jurisprudence
Disclosure - legislation & jurisprudence
Estonia
Ethics Committees, Research
Family
Genetics, Population
Great Britain
Haplotypes - genetics
Human Genome Project
Humans
Iceland
Informed Consent - legislation & jurisprudence
Internationality
Presumed Consent - legislation & jurisprudence
Refusal to Participate - legislation & jurisprudence
Singapore
Abstract
The advent of the human genome sequence has focused research on understanding underlying genetic links to complex diseases such as cancer, asthma and heart disease. In the past few years, individual countries, such as Iceland, Estonia, Singapore and the United Kingdom, have created national databases of their citizens' DNA for comparative research. Most recently, an international consortium including Nigeria, Japan, China and the United States launched a $100 million project called the International HapMap to map the human genome according to haplotypes, blocks of DNA that contain genetic variation. Such population genetic databases present challenging ethical, social and legal issues, yet regulation of genetic information has developed sporadically, from region to region, without a consistent international standard. Without a clear understanding of the consequences of genetic research in terms of individual and community-wide discrimination and stigmatization, genetic databases raise concerns about the protection of genetic information. This Note provides a survey of the evolving landscape of population genetic databases as a legislative and public policy tool for national and international regulators. It compares different approaches to regulating the collection and use of population genetic databases in order to understand what areas of consensus are formulating a foundation for an international standard. As the first population genetics project that will span multiple countries for the collection of DNA, the International HapMap has the potential to become an influential standard for the protection of population genetic information. This Note highlights issues among the national databases and the HapMap project that raise ethical, social and legal concerns for the future and recommends further protections for both individual donors and community interests.
PubMed ID
16755693 View in PubMed
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