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High validity of cardiomyopathy diagnoses in western Sweden (1989-2009).

https://arctichealth.org/en/permalink/ahliterature296697
Source
ESC Heart Fail. 2018 04; 5(2):233-240
Publication Type
Journal Article
Multicenter Study
Research Support, Non-U.S. Gov't
Date
04-2018
Author
Carmen Basic
Annika Rosengren
Sandra Lindström
Maria Schaufelberger
Author Affiliation
Section of Emergency and Cardiovascular Medicine, Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden.
Source
ESC Heart Fail. 2018 04; 5(2):233-240
Date
04-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Research Support, Non-U.S. Gov't
Keywords
Aged
Cardiomyopathies - diagnosis - epidemiology
Echocardiography - methods
Female
Heart Ventricles - diagnostic imaging
Humans
Male
Middle Aged
Morbidity - trends
Registries
Reproducibility of Results
Retrospective Studies
Sweden - epidemiology
Abstract
Hospital discharges with a diagnosis of cardiomyopathy have more than doubled in Sweden since 1987. We validated the cardiomyopathy diagnoses over this time period to investigate that the increase was real and not a result of improved recognition of the diagnosis and better diagnostic methods.
Every fifth year from 1989 to 2009, records for all patients with a cardiomyopathy diagnosis were identified by searching the local registers in three hospitals in Västra Götaland, Sweden. The diagnoses were validated according to criteria defined by the European Society of Cardiology from 2008. The population comprised 611 cases with cardiomyopathy diagnoses [mean age 58.9 (SD 15.5) years, 68.2% male], divided into three major groups: dilated, hypertrophic, and other cardiomyopathies. Hypertrophic cardiomyopathy and hypertrophic obstructive cardiomyopathy were analysed as a group. Cardiomyopathies for which there were few cases, such as restrictive, arrhythmogenic right ventricular, left ventricular non-compaction, takotsubo, and peripartum cardiomyopathies, were analysed together and defined as 'other cardiomyopathies'. Relevant co-morbidities were registered. The use of echocardiography was 99.7%, of which 94.6% was complete echocardiography reports. The accuracy rates of the diagnoses dilated cardiomyopathy, hypertrophic cardiomyopathy, and other cardiomyopathies were 85.5%, 87.5%, and 100%, respectively, with no differences between the three hospitals or years studied; nor did the prevalence of co-morbidities differ.
The accuracy rate of the cardiomyopathy diagnoses from in-hospital records from >600 patients in western Sweden during a 20 year period was 86.6%, with no significant trend over time, strengthening epidemiological findings that this is likely due to an actual increase in cardiomyopathy diagnoses rather than changes in coding practices. The use of echocardiography was high, and there was no significant difference in co-morbidities during the study period. The accuracy rate of the cardiomyopathy diagnoses during the 20 year period was high. The use of diagnostic tools did not increase under the study period, and once cardiomyopathy diagnoses were suspected, echocardiography was performed in almost all cases. In this study, the occurrence of cardiomyopathy was increasing over time without significant increase of co-morbidity, supporting that an actual increase of cardiomyopathy has occurred.
PubMed ID
29024504 View in PubMed
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Measurement properties of the Swedish modified version of the Postural Assessment Scale for Stroke Patients (SwePASS) using Rasch analysis.

https://arctichealth.org/en/permalink/ahliterature294589
Source
Eur J Phys Rehabil Med. 2017 Dec; 53(6):848-855
Publication Type
Journal Article
Multicenter Study
Observational Study
Date
Dec-2017
Author
Carina U Persson
Annika Linder
Peter Hagell
Author Affiliation
Department of Clinical Neuroscience and Rehabilitation, Institute of Neuroscience and Physiology Rehabilitation Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden - carina.persson@neuro.gu.se.
Source
Eur J Phys Rehabil Med. 2017 Dec; 53(6):848-855
Date
Dec-2017
Language
English
Publication Type
Journal Article
Multicenter Study
Observational Study
Keywords
Aged
Aged, 80 and over
Cross-Sectional Studies
Disability Evaluation
Female
Humans
Male
Postural Balance - physiology
Reproducibility of Results
Stroke - complications - physiopathology
Stroke rehabilitation
Sweden
Abstract
A previous small-sample (N.=150) Rasch analysis of the Swedish modified version of the Postural Assessment Scale for Stroke Patients (SwePASS) suggested problems regarding response categories and redundant items that need confirmation in larger samples with more severe strokes.
The aim of this study was to evaluate the measurement properties of the SwePASS in patients with acute stroke.
A multicenter, cross-sectional study.
Two stroke units in Western Sweden.
The study cohort included 250 consecutive inpatients undergoing rehabilitation after acute stroke.
The SwePASS assessments were performed once within the first four days after admission to the stroke units. The data were analyzed according to the Rasch measurement model regarding targeting, model fit, reliability, response category function, local dependence and differential item functioning.
Postural control of 250 patients (median age, 76.5 years) was assessed with the SwePASS within median of two days after admission to the stroke units. The SwePASS covered a continuum of different levels of postural control, but had suboptimal targeting with insufficient representation of lower and higher levels of postural control. The reliability was high, the item fit statistics were generally acceptable and there was no differential item functioning by sex, age and stroke localization. However, response categories did not function as expected for four of the 12 SwePASS items and five items exhibited local dependency.
The SwePASS exhibited several promising measurement properties. To improve the scale, poor targeting, illogical response categories and local dependency should be addressed.
The SwePASS provides valuable clinical information regarding postural control in the acute phase after stroke.
PubMed ID
28497929 View in PubMed
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Evaluation of vision screening in five- to eight-year-old children living in Region Västra Götaland, Sweden - a prospective multicentre study.

https://arctichealth.org/en/permalink/ahliterature299322
Source
Acta Ophthalmol. 2019 Mar; 97(2):158-164
Publication Type
Journal Article
Multicenter Study
Date
Mar-2019
Author
Emelie Gyllencreutz
Anna Chouliara
Afsaneh Alibakhshi
Mathias Tjörnvik
Eva Aring
Marita Andersson GröZ
Author Affiliation
Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, The Sahlgrenska Academy at University of Gothenburg, Gothenburg, Sweden.
Source
Acta Ophthalmol. 2019 Mar; 97(2):158-164
Date
Mar-2019
Language
English
Publication Type
Journal Article
Multicenter Study
Keywords
Amblyopia - diagnosis - epidemiology
Child
Child, Preschool
Female
Humans
Incidence
Male
Prospective Studies
Refraction, Ocular
Refractive Errors - diagnosis - epidemiology
Reproducibility of Results
Sweden - epidemiology
Vision Screening
Visual acuity
Abstract
To evaluate the current vision screening criteria regarding amblyopia and refractive errors, with emphasis on screening limits and retesting, in Region Västra Götaland (VGR), Sweden. Visual acuity (VA) screening is performed by nurses at primary healthcare centres (PHCs) in 4-year-old children and at school in 6- or 7-year-old children. Children with VA 0.19 logMAR) at either eye are referred. If VA is 0.65 in one or both eyes, a retest is performed by nurses at PHCs and schools, the children are then referred if VA is 0.10 logMAR).
We included all children aged =5 and
PubMed ID
30280519 View in PubMed
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An analysis of electronic health record-related patient safety incidents.

https://arctichealth.org/en/permalink/ahliterature291518
Source
Health Informatics J. 2017 06; 23(2):134-145
Publication Type
Journal Article
Multicenter Study
Research Support, Non-U.S. Gov't
Date
06-2017
Author
Sari Palojoki
Matti Mäkelä
Lasse Lehtonen
Kaija Saranto
Author Affiliation
University of Eastern Finland, Kuopio, Finland.
Source
Health Informatics J. 2017 06; 23(2):134-145
Date
06-2017
Language
English
Publication Type
Journal Article
Multicenter Study
Research Support, Non-U.S. Gov't
Keywords
Electronic Health Records - instrumentation - standards - statistics & numerical data
Finland
Humans
Medical Errors - statistics & numerical data - trends
Patient Safety - standards - statistics & numerical data
Reproducibility of Results
Retrospective Studies
Safety Management - methods - standards
Abstract
The aim of this study was to analyse electronic health record-related patient safety incidents in the patient safety incident reporting database in fully digital hospitals in Finland. We compare Finnish data to similar international data and discuss their content with regard to the literature. We analysed the types of electronic health record-related patient safety incidents that occurred at 23 hospitals during a 2-year period. A procedure of taxonomy mapping served to allow comparisons. This study represents a rare examination of patient safety risks in a fully digital environment. The proportion of electronic health record-related incidents was markedly higher in our study than in previous studies with similar data. Human-computer interaction problems were the most frequently reported. The results show the possibility of error arising from the complex interaction between clinicians and computers.
PubMed ID
26951568 View in PubMed
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Validation of the 24-item recovery assessment scale-revised (RAS-R) in the Norwegian language and context: a multi-centre study.

https://arctichealth.org/en/permalink/ahliterature292463
Source
Health Qual Life Outcomes. 2018 Jan 25; 16(1):23
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Jan-25-2018
Author
Eva Biringer
Marit Tjoflåt
Author Affiliation
Department of Research and Innovation, Helse Fonna Local Health Authority, PO Box 2170, N-5504, Haugesund, Norway. eva.biringer@helse-fonna.no.
Source
Health Qual Life Outcomes. 2018 Jan 25; 16(1):23
Date
Jan-25-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adult
Aged
Cross-Sectional Studies
Factor Analysis, Statistical
Female
Humans
Language
Male
Mental Disorders - psychology
Middle Aged
Norway
Outcome Assessment (Health Care) - methods
Psychometrics
Quality of Life
Reproducibility of Results
Self Report - standards
Translations
Young Adult
Abstract
The Recovery Assessment Scale-revised (RAS-R) is a self-report instrument measuring mental health recovery. The purpose of the present study was to translate and adapt the RAS-R into the Norwegian language and to investigate its psychometric properties in terms of factor structure, convergent and discriminant validity and reliability in the Norwegian context.
The present study is a cross-sectional multi-centre study. After a pilot test, the Norwegian version of the RAS-R was distributed to 231 service users in mental health specialist and community services. The factor structure of the instrument was investigated by a confirmatory factor analysis (CFA), and internal consistency was assessed by Cronbach's alpha.
The RAS-R was found to be acceptable and feasible for service users. The original five-factor structure was confirmed. All model fit indices, including the standardised root mean square residual (SRMR), which is independent of the ?2-test, met the criteria for an acceptable model fit. Internal consistencies within sub-scales as measured by Cronbach's alpha ranged from 0.65 to 0.85. Cronbach's alpha for the total scale was 0.90. As expected, some redundancy between factors existed (in particular among the factors Personal confidence and hope, Goal and success orientation and Not dominated by symptoms).
The Norwegian RAS-R showed acceptable psychometric properties in terms of convergent validity and reliability, and fit indices from the CFA confirmed the original factor structure. We recommend the Norwegian RAS-R as a tool in service users' and health professionals' collaborative work towards the service users' recovery goals and as an outcome measure in larger evaluations.
Notes
Cites: Community Ment Health J. 1999 Jun;35(3):231-9 PMID 10401893
Cites: Aust N Z J Psychiatry. 2011 Apr;45(4):267-80 PMID 21314238
Cites: Eur Psychiatry. 2012 Jan;27(1):19-32 PMID 22130177
Cites: BMC Psychiatry. 2015 Jul 24;15:172 PMID 26205099
Cites: J Pers Assess. 2006 Aug;87(1):35-50 PMID 16856785
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Cites: Community Ment Health J. 2012 Dec;48(6):804-12 PMID 22569787
Cites: Schizophr Bull. 2004;30(4):1035-41 PMID 15957202
Cites: Psychol Methods. 2009 Mar;14(1):6-23 PMID 19271845
Cites: Psychiatr Serv. 2014 Apr 1;65(4):442-53 PMID 24487405
Cites: Psychiatry Res. 2010 May 30;177(3):309-17 PMID 20227768
Cites: J Ment Health. 2012 Apr;21(2):192-207 PMID 22559830
Cites: Eur Psychiatry. 2017 Mar;41:60-67 PMID 28049083
PubMed ID
29370843 View in PubMed
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Clinical experience of a new reference material for exercise capacity in exercise stress testing in Sweden.

https://arctichealth.org/en/permalink/ahliterature295512
Source
Clin Physiol Funct Imaging. 2018 Jul; 38(4):699-702
Publication Type
Comparative Study
Journal Article
Multicenter Study
Date
Jul-2018
Author
Thomas Lindow
Henrik Mosén
Henrik Engblom
Author Affiliation
Department of Clinical Physiology, Växjö Central Hospital, Växjö, Sweden.
Source
Clin Physiol Funct Imaging. 2018 Jul; 38(4):699-702
Date
Jul-2018
Language
English
Publication Type
Comparative Study
Journal Article
Multicenter Study
Keywords
Adult
Aged
Aged, 80 and over
Bicycling - standards
Cardiovascular Diseases - diagnosis - physiopathology
Exercise Test - standards
Exercise Tolerance
Female
Humans
Male
Middle Aged
Myocardial Perfusion Imaging
Predictive value of tests
Reference Values
Reproducibility of Results
Retrospective Studies
Sweden
Abstract
In 2014, the Swedish Association of Clinical Physiology recommended the use of a new reference material for exercise capacity in bicycle exercise stress testing, 'the Kalmar material'. Compared to the formerly used reference material, 'the Kristianstad material', an increase in the amount of patients being classified as having decreased exercise capacity was expected, but the extent of this in clinical practice is not known.
Results of exercise capacity from 1449 bicycle exercise tests, in patients aged =20 years (656 women, 793 men) performed at two departments of Clinical Physiology before and after change of reference materials, were collected. Maximal workload was related to the predicted values of both reference materials. If made, recommendations for supplemental nuclear myocardial perfusion imaging study by the attending physician were noted.
Using the new reference material, 31% of all patients were classified as having a decreased exercise capacity, compared to 17% using the formerly used reference material. The difference between the two reference materials was largest in the older age groups. In one of the departments, an increase in recommendations of supplemental myocardial perfusion studies was seen after introduction of the new reference material, whereas the opposite was seen at the other department.
A large amount of patients are being classified as having decreased exercise capacity and very few as having good exercise capacity using the new reference material for exercise capacity.
PubMed ID
28940689 View in PubMed
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The Russian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295147
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):339-346
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Irina Nikishina
Ekaterina Alexeeva
Svetlana Arsenyeva
Svetlana Salugina
Maria Kaleda
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Pediatric Department, V.A. Nasonova Research Institute of Rheumatology, Moscow, Kashirskoe shosse 34A, 115522, Russian Federation. irpetnik_vip@mail.ru.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):339-346
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Disability Evaluation
Female
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Russia
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Russian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (25% systemic, 19% oligoarticular, 38% RF-negative polyarthritis, 18% other categories) and 198 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Russian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637369 View in PubMed
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The Swedish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295148
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):371-377
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Maria Ekelund
Lillemor Berntson
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Department of Pediatrics, Ryhov County Hospital, Jonkoping, 551 85, Sweden. maria.ekelund@rjl.se.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):371-377
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Disability Evaluation
Female
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Sweden
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Swedish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 68 JIA patients (8.8% systemic, 44.1% oligoarticular, 13.2% RF negative polyarthritis, 33.9% other categories) and 76 healthy children, were enrolled in two centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Swedish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637346 View in PubMed
Less detail

The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295149
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):131-138
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Susan Nielsen
Troels Herlin
Anne Estmann Christensen
Marek Zak
Charlotte Myrup
Mia Glerup
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Paediatric Rheumatology Unit, Børnereumatologiskambulatorium, afsnit 4272, BørneUngeKlinikken, Juliane Marie Centret, Rigshospitalet, Blegdamsvej 9, 2100, Copenhagen, Denmark. rh04430@rh.dk.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):131-138
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Denmark
Disability Evaluation
Female
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9% systemic, 35% oligoarticular, 22.1% RF negative polyarthritis, 35% other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637339 View in PubMed
Less detail

The Finnish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295150
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):179-186
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Pekka Lahdenne
Kristiina Aalto
Katariina Rebane
Paula Vahasalo
Anne Kristiina Putto-Laurila
Merja Malin
Liisa Kroger
Hanna Saila
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Pediatric Rheumatology, Children's Hospital, Helsinki University Central Hospital, Stenbackink, 11, 00290, Helsinki, Finland. pekka.lahdenne@hus.fi.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):179-186
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Disability Evaluation
Female
Finland
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Finnish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 173 JIA patients (1.2% systemic, 46.2% oligoarticular, 39.9% RF-negative polyarthritis, 12.7% other categories) and 100 healthy children, were enrolled in five paediatric rheumatology centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Finnish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
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PubMed ID
29637332 View in PubMed
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