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Improved data validity in the Swedish Register of Palliative Care.

https://arctichealth.org/en/permalink/ahliterature287189
Source
PLoS One. 2017;12(10):e0186804
Publication Type
Article
Date
2017
Author
Lisa Martinsson
Per-Anders Heedman
Staffan Lundström
Bertil Axelsson
Source
PLoS One. 2017;12(10):e0186804
Date
2017
Language
English
Publication Type
Article
Keywords
Humans
Palliative Care
Registries
Sweden
Abstract
The Swedish Register of Palliative Care (SRPC) is a national quality register that collects data about end-of-life care from healthcare providers that care for dying patients. Data are used for quality control and research. Data are mainly collected with an end-of-life questionnaire (ELQ), which is completed by healthcare staff after the death of a patient. A previous validity assessment of the ELQ showed insufficient validity in some items including symptom relief. The aim of this study was to examine the validity of the revised ELQ.
Data from 100 consecutive patients' medical records at two specialised palliative care units were used to complete new ELQs, which were then compared to the ELQ registrations from the SRPC for the same patients. The level of agreement was calculated for each ELQ item. To account for the possibility of the agreement occurring by chance, Cohen's kappa was calculated for suitable items. To examine the extent of registration mistakes when transferring the paper form to the web, the original paper versions of the ELQ filled out at the units were compared to data from the ELQs reported to the SRPC.
Level of agreement between ELQ registrations from the SRPC and the new ELQs based on the medical records varied between 0.55 and 1.00, where 24 items showed level of agreement above 0.80 and 9 items showed level of agreement below 0.80. Cohen's kappa with 95% confidence intervals was calculated for 24 items. The kappa values showed that two items had poor agreement, four fair agreement, 11 moderate agreement, five good agreement and two very good agreement. The level of agreement varied between 0.93 and 1.00 when comparing the ELQ registrations in the SRPC and the paper forms.
The revised ELQ contains more items with high levels of agreement between registrations in the SRPC and notes in the patients' medical records when compared to the previous version. Validating issues around symptom assessment remains a challenge in our model of quality assessment.
Notes
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PubMed ID
29049396 View in PubMed
Less detail
Source
Lakartidningen. 2016 12 13;113
Publication Type
Article
Date
12-13-2016
Author
Olivia Wigzell
Source
Lakartidningen. 2016 12 13;113
Date
12-13-2016
Language
Swedish
Publication Type
Article
Keywords
Healthcare Disparities
Humans
Palliative Care - standards
Sweden
PubMed ID
27959469 View in PubMed
Less detail

[No to euthanasia, yes to good palliative care!].

https://arctichealth.org/en/permalink/ahliterature212125
Source
Lakartidningen. 1996 Apr 24;93(17):1598, 1603
Publication Type
Article
Date
Apr-24-1996
Author
A M Gravgaard
Author Affiliation
Helsingborgs Hospice
Source
Lakartidningen. 1996 Apr 24;93(17):1598, 1603
Date
Apr-24-1996
Language
Swedish
Publication Type
Article
Keywords
Ethics, Medical
Euthanasia
Humans
Palliative Care - standards
Sweden
PubMed ID
8667761 View in PubMed
Less detail
Source
Tidsskr Nor Laegeforen. 2001 Sep 20;121(22):2576
Publication Type
Article
Date
Sep-20-2001
Author
S. Kaasa
E. Brenne
Source
Tidsskr Nor Laegeforen. 2001 Sep 20;121(22):2576
Date
Sep-20-2001
Language
Norwegian
Publication Type
Article
Keywords
Humans
Norway
Palliative Care - standards
Terminal Care - standards
PubMed ID
11668749 View in PubMed
Less detail

Providing Palliative Care in a Swedish Support Home for People Who Are Homeless.

https://arctichealth.org/en/permalink/ahliterature290915
Source
Qual Health Res. 2016 Jul; 26(9):1252-62
Publication Type
Journal Article
Date
Jul-2016
Author
Cecilia Håkanson
Jonas Sandberg
Mirjam Ekstedt
Elisabeth Kenne Sarenmalm
Mats Christiansen
Joakim Öhlén
Author Affiliation
Ersta Sköndal University College, Stockholm, Sweden cecilia.hakanson@esh.se.
Source
Qual Health Res. 2016 Jul; 26(9):1252-62
Date
Jul-2016
Language
English
Publication Type
Journal Article
Keywords
Communication
Homeless Persons
Humans
Palliative Care
Qualitative Research
Sweden
Abstract
Despite high frequencies of multiple, life-limiting conditions relating to palliative care needs, people who are homeless are one of the most underserved and rarely encountered groups in palliative care settings. Instead, they often die in care places where palliative competence is not available. In this qualitative single-case study, we explored the conditions and practices of palliative care from the perspective of staff at a Swedish support home for homeless people. Interpretive description guided the research process, and data were generated from repeated reflective conversations with staff in groups, individually, and in pairs. The findings disclose a person-centered approach to palliative care, grounded in the understanding of the person's health/illness and health literacy, and how this is related to and determinant on life as a homeless individual. Four patterns shape this approach: building trustful and family-like relationships, re-dignifying the person, re-considering communication about illness and dying, and re-defining flexible and pragmatic care solutions.
PubMed ID
25994318 View in PubMed
Less detail

The perspectives of bereaved family members on their experiences of support in palliative care.

https://arctichealth.org/en/permalink/ahliterature106532
Source
Int J Palliat Nurs. 2013 Jun;19(6):282-8
Publication Type
Article
Date
Jun-2013
Author
Tina Lundberg
Mariann Olsson
Carl Johan Fürst
Author Affiliation
Palliative Research Centre, PO Box 11189, SE-100 61 Stockholm, Sweden. tina.lundberg@esh.se
Source
Int J Palliat Nurs. 2013 Jun;19(6):282-8
Date
Jun-2013
Language
English
Publication Type
Article
Keywords
Bereavement
Family - psychology
Humans
Palliative Care
Social Support
Sweden
Abstract
To explore family members' supportive interactions in palliative care and the emotional experiences that they associate with these interactions.
Qualitative individual interviews were performed with bereaved family members recruited from an urban palliative care service in Sweden. The interviews were analysed using inductive qualitative content analysis.
Five categories of supportive interactions with staff members were linked with emotional consequences: informational support, supportive encounters, professional focus of staff, a supportive environment, and bereavement support. Having a dialogue with family members nurtured certainty and security, supportive encounters gave a warm and comforting feeling, and bereavement support contributed to feelings of strength. Environmental factors contributed to dignity.
Supportive interactions with staff and within a home-like environment help to build resilience if tailored to the family member's own needs.
PubMed ID
24151739 View in PubMed
Less detail

[No to euthanasia--yes to palliative care! Physician-assisted suicide is unethical, too]

https://arctichealth.org/en/permalink/ahliterature68480
Source
Lakartidningen. 1996 Apr 3;93(14):1309-10
Publication Type
Article
Date
Apr-3-1996
Author
J O Ottosson
Source
Lakartidningen. 1996 Apr 3;93(14):1309-10
Date
Apr-3-1996
Language
Swedish
Publication Type
Article
Keywords
Ethics, Medical
Euthanasia
Humans
Palliative Care - standards
Suicide, Assisted
Sweden
PubMed ID
8656848 View in PubMed
Less detail

BC network to improve palliative care.

https://arctichealth.org/en/permalink/ahliterature215306
Source
CMAJ. 1995 May 1;152(9):1378
Publication Type
Article
Date
May-1-1995
Author
M R McKenzie
Source
CMAJ. 1995 May 1;152(9):1378
Date
May-1-1995
Language
English
Publication Type
Article
Keywords
Analgesia - standards
British Columbia
Humans
Palliative Care - standards
Patient Advocacy
Notes
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Cites: J Palliat Care. 1991 Winter;7(4):21-51783957
Comment On: CMAJ. 1995 Feb 1;152(3):3257530161
PubMed ID
7537172 View in PubMed
Less detail

[We can reduce severe pain of the dying].

https://arctichealth.org/en/permalink/ahliterature207563
Source
Lakartidningen. 1997 Sep 3;94(36):3004
Publication Type
Article
Date
Sep-3-1997
Author
E. Aldstedt
Source
Lakartidningen. 1997 Sep 3;94(36):3004
Date
Sep-3-1997
Language
Swedish
Publication Type
Article
Keywords
Home Care Services, Hospital-Based
Humans
Palliative Care
Sweden
Terminal Care
PubMed ID
9312613 View in PubMed
Less detail

309 records – page 1 of 31.