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[The Swedish palliative registry has scientific shortages. But it's suitable for own quality work].

https://arctichealth.org/en/permalink/ahliterature133954
Source
Lakartidningen. 2011 Apr 20-May 3;108(16-17):912-3
Publication Type
Article
Author
Eva Thoren Todoulos
Peter Strang
Author Affiliation
Stockholms sjukhem. eva.thoren.todoulos@stockholmssjukhem.se
Source
Lakartidningen. 2011 Apr 20-May 3;108(16-17):912-3
Language
Swedish
Publication Type
Article
Keywords
Humans
Palliative Care - standards
Quality Assurance, Health Care
Registries - standards
Sweden
Terminology as Topic
PubMed ID
21644379 View in PubMed
Less detail

The glimmering embers: experiences of hope among cancer patients in palliative home care.

https://arctichealth.org/en/permalink/ahliterature136705
Source
Palliat Support Care. 2011 Mar;9(1):43-54
Publication Type
Article
Date
Mar-2011
Author
Louise Olsson
Gunnel Ostlund
Peter Strang
Eva Jeppsson Grassman
Maria Friedrichsen
Author Affiliation
Department of Social and Welfare Studies, Faculty of Health Sciences, Campus Norrköping, Linköping University, Norrköping, Sweden. louol@isv.liu.se
Source
Palliat Support Care. 2011 Mar;9(1):43-54
Date
Mar-2011
Language
English
Publication Type
Article
Keywords
Adult
Home Care Services
Humans
Interviews as Topic
Morale
Neoplasms - psychology
Palliative Care - psychology
Sweden
Abstract
The experience of hope among cancer patients in palliative care is important information for healthcare providers, but research on the subject is sparse. The aim of this article was to explore how cancer patients admitted to palliative home care experienced the significance of hope and used hope during 6 weeks throughout the last phase of their life, and to assess their symptoms and hope status during 6 weeks throughout the last phase of their lives.
Eleven adult patients with cancer participated in 20 interviews and completed seven diaries. The participants were recruited from two palliative care units in the southeast of Sweden. The method used was Grounded Theory (GT), and analysis was based on the constant comparative method.
The core category, glimmering embers, was generated from four processes: (1) The creation of "convinced" hope, with a focus on positive events, formed in order to have something to look forward to; (2) The creation of "simulated hope," including awareness of the lack of realism, but including attempts to believe in unrealistic reasons for hope; (3) The collection of and maintaining of moments of hope, expressing a wish to "seize the day" and hold on to moments of joy and pleasure; and (4) "Gradually extinct" hope, characterized by a lack of energy and a sense of time running out.
The different processes of hope helped the patients to continue to live when they were close to death. Hope should be respected and understood by the professionals giving them support.
PubMed ID
21352617 View in PubMed
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Soft tissue massage: early intervention for relatives whose family members died in palliative cancer care.

https://arctichealth.org/en/permalink/ahliterature143381
Source
J Clin Nurs. 2010 Apr;19(7-8):1040-8
Publication Type
Article
Date
Apr-2010
Author
Berit S Cronfalk
Britt-Marie Ternestedt
Peter Strang
Author Affiliation
Department of Oncology-Pathology, Karolinska Institutet and The Vårdal Institute, The Swedish Institute for Health Sciences and Research and Development Department, Stockholms Sjukhem Foundation, Stockholm, Sweden. berit.cronfalk@ki.se
Source
J Clin Nurs. 2010 Apr;19(7-8):1040-8
Date
Apr-2010
Language
English
Publication Type
Article
Keywords
Adaptation, Psychological
Adult
Aged
Bereavement
Family - psychology
Female
Humans
Male
Massage - methods
Middle Aged
Palliative Care
Qualitative Research
Social Support
Sweden
Abstract
This paper explores how bereaved relatives experienced soft tissue massage during the first four months after the death of a family member who was in palliative cancer care.
Death of a close family member or friend is recognised as being an emotional and existential turning point in life. Previous studies emphasise need for various support strategies to assist relatives while they are grieving.
Qualitative design.
Eighteen bereaved relatives (11 women and seven men) received soft tissue massage (25 minutes, hand or foot) once a week for eight weeks. In-depth interviews were conducted after the end of the eight-week periods. Interviews were analysed using a qualitative descriptive content analysis method.
Soft tissue massage proved to be helpful and to generate feelings of consolation in the first four months of grieving. The main findings were organised into four categories: (1) a helping hand at the right time, (2) something to rely on, (3) moments of rest and (4) moments of retaining energy. The categories were then conceptualised into this theme: feelings of consolation and help in learning to restructure everyday life.
Soft tissue massage was experienced as a commendable source of consolation support during the grieving process. An assumption is that massage facilitates a transition toward rebuilding identity, but more studies in this area are needed.
Soft tissue massage appears to be a worthy, early, grieving-process support option for bereaved family members whose relatives are in palliative care.
Notes
Comment In: J Clin Nurs. 2010 Apr;19(7-8):1189-9220492071
PubMed ID
20492048 View in PubMed
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Palliative care in COPD--web survey in Sweden highlights the current situation for a vulnerable group of patients.

https://arctichealth.org/en/permalink/ahliterature113586
Source
Ups J Med Sci. 2013 Aug;118(3):181-6
Publication Type
Article
Date
Aug-2013
Author
Susann Strang
Ann Ekberg-Jansson
Peter Strang
Lars-Olof Larsson
Author Affiliation
Angered Local Hospital, Angered, Sweden. susann.strang@gu.se
Source
Ups J Med Sci. 2013 Aug;118(3):181-6
Date
Aug-2013
Language
English
Publication Type
Article
Keywords
Data Collection
Humans
Internet
Palliative Care - utilization
Patient Care Management
Patient care team
Pulmonary Disease, Chronic Obstructive - therapy
Referral and Consultation
Sweden
Abstract
Chronic obstructive pulmonary disease (COPD) is a common cause of death. Despite the heavy symptom burden in late stages, these patients are relatively seldom referred to specialist palliative care.
A web-based survey concerning medical and organizational aspects of palliative care in COPD was distributed to respiratory physicians in Sweden. There were 93 respondents included in the study.
Palliative care issues were regularly discussed with the patients according to a third of the respondents. About half of the respondents worked in settings where established routines for co-operation with palliative units were available at least to some extent. Less than half of the respondents (39%) were aware of current plans to develop palliative care, either as a co-operative effort or within the facility. Palliative care is focused on physical, psychological, social, and existential dimensions, and the proportions of respondents providing support within these dimensions, 'always' or 'often', were 83%, 36%, 32%, and 11%, respectively. Thus, to treat the physical dimensions was perceived as much more obvious than to address the other dimensions.
The survey indicates that the priorities and resources for palliative care in COPD are insufficient in Sweden. The data, despite limitations, reveal a lack of established team-work with specialized palliative care units and actual plans for such co-operation.
Notes
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PubMed ID
23710665 View in PubMed
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[Most of the terminally ill patients want to die at home. Advanced home care services can often replace palliative hospital care]

https://arctichealth.org/en/permalink/ahliterature19251
Source
Lakartidningen. 2002 Feb 21;99(8):742-3, 746
Publication Type
Article
Date
Feb-21-2002
Author
Peter Strang
Author Affiliation
Karolinska institutet och Stockholms sjukhem, Stockholm. peter.strang@onkpat.ki.se
Source
Lakartidningen. 2002 Feb 21;99(8):742-3, 746
Date
Feb-21-2002
Language
Swedish
Publication Type
Article
Keywords
Home Care Services, Hospital-Based - manpower - organization & administration
Humans
Neoplasms - nursing - psychology
Palliative Care - methods - psychology
Sweden
Terminal Care - methods - psychology
Terminally Ill - psychology
PubMed ID
11894610 View in PubMed
Less detail

Dying cancer patients' own opinions on euthanasia: an expression of autonomy? A qualitative study.

https://arctichealth.org/en/permalink/ahliterature134773
Source
Palliat Med. 2012 Jan;26(1):34-42
Publication Type
Article
Date
Jan-2012
Author
Marit Karlsson
Anna Milberg
Peter Strang
Author Affiliation
Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden. marit.karlsson@ki.se
Source
Palliat Med. 2012 Jan;26(1):34-42
Date
Jan-2012
Language
English
Publication Type
Article
Keywords
Adult
Aged
Aged, 80 and over
Decision Making
Euthanasia - psychology
Female
Humans
Male
Middle Aged
Neoplasms - psychology
Palliative Care
Personal Autonomy
Qualitative Research
Questionnaires
Sweden
Trust
Abstract
Deliberations on euthanasia are mostly theoretical, and often lack first-hand perspectives of the affected persons.
Sixty-six patients suffering from cancer in a palliative phase were interviewed about their perspectives of euthanasia in relation to autonomy. The interviews were transcribed verbatim and analysed using qualitative content analysis with no predetermined categories.
The informants expressed different positions on euthanasia, ranging from support to opposition, but the majority were undecided due to the complexity of the problem. The informants' perspectives on euthanasia in relation to autonomy focused on decision making, being affected by (1) power and (2) trust. Legalization of euthanasia was perceived as either (a) increasing patient autonomy by patient empowerment, or (b) decreasing patient autonomy by increasing the medical power of the health care staff, which could be frightening. The informants experienced dependence on others, and expressed various levels of trust in others' intentions, ranging from full trust to complete mistrust.
Dying cancer patients perceive that they cannot feel completely independent, which affects true autonomous decision making. Further, when considering legalization of euthanasia, the perspectives of patients fearing the effects of legalization should also be taken into account, not only those of patients opting for it.
PubMed ID
21543526 View in PubMed
Less detail

Advanced palliative home care: next-of-kin's perspective.

https://arctichealth.org/en/permalink/ahliterature18088
Source
J Palliat Med. 2003 Oct;6(5):749-56
Publication Type
Article
Date
Oct-2003
Author
Anna Milberg
Peter Strang
Maria Carlsson
Susanne Börjesson
Author Affiliation
Linköpings Universitet, Division of Geriatrics and Palliative Research Unit, Linköping, Sweden. anna.milberg@lio.se
Source
J Palliat Med. 2003 Oct;6(5):749-56
Date
Oct-2003
Language
English
Publication Type
Article
Keywords
Caregivers - psychology
Comparative Study
Family - psychology
Female
Home Care Services - organization & administration
Humans
Male
Palliative Care - organization & administration
Professional-Family Relations
Questionnaires
Reproducibility of Results
Research Support, Non-U.S. Gov't
Sweden
Abstract
GOALS: (1). To describe what aspects are important when next-of-kin evaluate advanced palliative home care (APHC) and (2). to compare the expressed aspects and describe eventual differences among the three settings, which differed in terms of length of services, geographic location, and population size. SUBJECTS AND METHODS: Four to 7 months after the patient's death (87% from cancer), 217 consecutive next-of-kin from three different settings in Sweden responded (response rate 86%) to three open-ended questions via a postal questionnaire. Qualitative content analysis was performed. MAIN RESULTS: Service aspects and comfort emerged as main categories. The staff's competence, attitude and communication, accessibility, and spectrum of services were valued service aspects. Comfort, such as feeling secure, was another important aspect and it concerned the next-of-kin themselves, the patients, and the families. Additionally, comfort was related to interactional issues such as being in the center and sharing caring with the staff. The actual place of care (i.e., being at home) added to the perceived comfort. Of the respondents, 87% described positive aspects of APHC and 28% negative aspects. No major differences were found among the different settings. CONCLUSIONS: Next-of-kin incorporate service aspects and aspects relating to the patient's and family's comfort when evaluating APHC. The importance of these aspects is discussed in relation to the content of palliative care and potential goals.
PubMed ID
14622454 View in PubMed
Less detail

Protection against perceptions of powerlessness and helplessness during palliative care: the family members' perspective.

https://arctichealth.org/en/permalink/ahliterature132242
Source
Palliat Support Care. 2011 Sep;9(3):251-62
Publication Type
Article
Date
Sep-2011
Author
Anna Milberg
Peter Strang
Author Affiliation
Department of Social and Welfare Studies, Linköping University, LAH/Unit of Palliative Care, University Hospital, Linköping, and Palliative Education and Research Centre in the County of Östergötland, Östergötland, Sweden. anna.milberg@isv.liu.se
Source
Palliat Support Care. 2011 Sep;9(3):251-62
Date
Sep-2011
Language
English
Publication Type
Article
Keywords
Adaptation, Psychological
Adult
Aged
Aged, 80 and over
Bereavement
Existentialism
Family - psychology
Female
Home Care Services
Humans
Internal-External Control
Male
Middle Aged
Neoplasms - psychology
Palliative Care - psychology
Power (Psychology)
Questionnaires
Sweden
Young Adult
Abstract
Resilience in relation to coping with stress, loss, and bereavement has recently received increased attention. The aim of the current study was to describe aspects that are experienced as a protection against powerlessness and/or helplessness during advanced palliative home care (APHC) or as a help when coping with such perceptions.
Both family members during ongoing APHC and family members 3-9 months after the patient's death responded (in total, N = 233; response rate 72%) to a postal questionnaire with mainly open-ended questions. The text responses were analyzed using Manifest Content Analysis.
Protection against powerlessness and helplessness had been facilitated by a stable patient condition, the patient coping well, a trusting relationship with the patient, practical and emotional support from family and friends, access to palliative expertise, and staff support that was both individually-focused and cooperative. Other aspects that had helped or protected family members against powerlessness and helplessness were a belief that they had their own reliable knowledge to manage the difficult situation, talking to someone, doing good for the patient, distracting activities, acceptance, meaning and hope, and an inner feeling of security.
The findings are discussed in relation to existential psychology, the dual process model of coping with bereavement, and repressive coping. Clinical implications are suggested.
PubMed ID
21838946 View in PubMed
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Together we can: experiences from 7 years of cross-sectional studies in a Swedish palliative care clinical research network.

https://arctichealth.org/en/permalink/ahliterature98342
Source
Palliat Med. 2010 Apr;24(3):261-6
Publication Type
Article
Date
Apr-2010
Author
Staffan Lundström
Eva Gyllenhammar
Ulla Martinsson
Peter Strang
Author Affiliation
Palliative Care Services, Stockholms Sjukhem Foundation and The Department of Oncology-Pathology, Karolinska Institute, Stockholm, Sweden. staffan.lundstrom@stockholmssjukhem.se
Source
Palliat Med. 2010 Apr;24(3):261-6
Date
Apr-2010
Language
English
Publication Type
Article
Keywords
Adolescent
Adult
Aged
Aged, 80 and over
Biomedical Research - methods - organization & administration - trends
Child
Child, Preschool
Cross-Sectional Studies
Data Collection - methods
Female
Humans
Internet
Male
Middle Aged
Neoplasms - epidemiology - therapy
Palliative Care
Sweden
Young Adult
Abstract
During recent years, research networks and collaboratives focusing on palliative care research have been established both nationally and internationally resulting in several ongoing projects. In 2002, a clinician-based research network, the Palliative Care Research Network in Sweden (PANIS), was established to stimulate research and development of palliative care in Sweden. The growing network, which today includes 60 specialized palliative care units, has used a web-based survey generator to collect data on symptom prevalence, treatment traditions and important issues in palliative care. Eleven different studies involving almost 11,000 patients have been performed within the network including studies on prevalence of antitumoral treatment, the use of opioids, corticosteroids, blood transfusions, parenteral nutrition and prevalence of palliative sedation therapy in specialized palliative care. The working method of the research network is described, and demographic data from 9,298 patients in six cross-sectional studies are presented. Using a relatively simple research methodology, the network has succeeded in addressing key clinical questions and in this article we share experiences and challenges met during the journey.
PubMed ID
20080806 View in PubMed
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12 records – page 1 of 2.