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Protection against perceptions of powerlessness and helplessness during palliative care: the family members' perspective.

https://arctichealth.org/en/permalink/ahliterature132242
Source
Palliat Support Care. 2011 Sep;9(3):251-62
Publication Type
Article
Date
Sep-2011
Author
Anna Milberg
Peter Strang
Author Affiliation
Department of Social and Welfare Studies, Linköping University, LAH/Unit of Palliative Care, University Hospital, Linköping, and Palliative Education and Research Centre in the County of Östergötland, Östergötland, Sweden. anna.milberg@isv.liu.se
Source
Palliat Support Care. 2011 Sep;9(3):251-62
Date
Sep-2011
Language
English
Publication Type
Article
Keywords
Adaptation, Psychological
Adult
Aged
Aged, 80 and over
Bereavement
Existentialism
Family - psychology
Female
Home Care Services
Humans
Internal-External Control
Male
Middle Aged
Neoplasms - psychology
Palliative Care - psychology
Power (Psychology)
Questionnaires
Sweden
Young Adult
Abstract
Resilience in relation to coping with stress, loss, and bereavement has recently received increased attention. The aim of the current study was to describe aspects that are experienced as a protection against powerlessness and/or helplessness during advanced palliative home care (APHC) or as a help when coping with such perceptions.
Both family members during ongoing APHC and family members 3-9 months after the patient's death responded (in total, N = 233; response rate 72%) to a postal questionnaire with mainly open-ended questions. The text responses were analyzed using Manifest Content Analysis.
Protection against powerlessness and helplessness had been facilitated by a stable patient condition, the patient coping well, a trusting relationship with the patient, practical and emotional support from family and friends, access to palliative expertise, and staff support that was both individually-focused and cooperative. Other aspects that had helped or protected family members against powerlessness and helplessness were a belief that they had their own reliable knowledge to manage the difficult situation, talking to someone, doing good for the patient, distracting activities, acceptance, meaning and hope, and an inner feeling of security.
The findings are discussed in relation to existential psychology, the dual process model of coping with bereavement, and repressive coping. Clinical implications are suggested.
PubMed ID
21838946 View in PubMed
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