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Patients' perspective of factors influencing quality of life while living with Crohn disease.

https://arctichealth.org/en/permalink/ahliterature98102
Source
Gastroenterol Nurs. 2010 Jan-Feb;33(1):37-44; quiz 45-6
Publication Type
Article
Author
Katarina Pihl-Lesnovska
Henrik Hjortswang
Anna-Christina Ek
Gunilla Hollman Frisman
Author Affiliation
Department of Endocrinology and Gastroenterology, University Hospital, Linköping, Sweden. Katarina.Pihl.Lesnovska@lio.se
Source
Gastroenterol Nurs. 2010 Jan-Feb;33(1):37-44; quiz 45-6
Language
English
Publication Type
Article
Keywords
Activities of Daily Living - psychology
Adaptation, Psychological
Adult
Aged
Aged, 80 and over
Attitude to Health
Cost of Illness
Crohn Disease - complications - prevention & control - psychology
Female
Humans
Life Change Events
Male
Middle Aged
Nursing Methodology Research
Outpatients - psychology
Power (Psychology)
Qualitative Research
Quality of Life - psychology
Questionnaires
Self Concept
Social Support
Sweden
Abstract
Crohn disease is a chronic inflammatory bowel disease of unknown etiology. The chronic, relapsing nature of Crohn disease produces physical, psychological, and social stress. The disease occurs early in life, and the effects of Crohn disease on daily life are associated with symptom burden; thus, managing their disease and coping with its impact is a lifelong process for sufferers. This study was undertaken to identify and describe the meaning of quality of life in patients with Crohn disease. Using a grounded theory methodology, 11 interviews were performed with 6 men and 5 women, 29-83 years of age, all suffering from Crohn disease. The experience of quality of life was associated with limitations in daily activity, the major theme that emerged from the analysis. Quality of life varied depending on how the patient managed limitations related to the symptoms of the disease. The categories of self-image, confirmatory relations, powerlessness, attitude toward life, and sense of well-being were conceptualized as the dominant themes derived from the data. When caring for these patients, it is important to identify limitations and provide support so that patients are able to maintain a daily life that can be perceived as normal and routine.
PubMed ID
20145449 View in PubMed
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