Skip header and navigation

2 records – page 1 of 1.

CHARGE association looking at the future--the voice of a family support group.

https://arctichealth.org/en/permalink/ahliterature219893
Source
Child Care Health Dev. 1993 Nov-Dec;19(6):395-409
Publication Type
Article
Author
K D Blake
D. Brown
Author Affiliation
Memorial University, St Johns, Newfoundland, Canada.
Source
Child Care Health Dev. 1993 Nov-Dec;19(6):395-409
Language
English
Publication Type
Article
Keywords
Abnormalities, Multiple - epidemiology - etiology - therapy
Adolescent
Adult
Case Management - standards
Child
Child Health Services - statistics & numerical data
Child, Preschool
Consumer Participation
Cost of Illness
Developmental Disabilities - etiology - therapy
Education, Special - statistics & numerical data
Female
Hearing Disorders - etiology - therapy
Humans
Infant
Male
Maternal Exposure - statistics & numerical data
Movement Disorders - etiology - therapy
Newfoundland and Labrador - epidemiology
Self-Help Groups - organization & administration - statistics & numerical data
Teratogens
Vision Disorders - etiology - therapy
Voluntary Health Agencies - statistics & numerical data
Abstract
CHARGE association is a non-random collection of congenital anomalies. The condition is becoming more widely known to medical and educational professionals. The number of children diagnosed is increasing, probably because of the greater awareness of this condition. This paper considers some of the long-term management problems which are often deferred in the early months, when acute life threatening problems take priority. Questionnaires were sent to parents via the CHARGE Association Family Support Group, UK. Thirty-nine were returned and incomplete information was sought by personal contact or telephone. The majority of children were known professionally to one or both authors and information was therefore checked from medical and educational notes. There is still widespread misunderstanding about the impact of multiple disability, especially when this includes multi-sensory impairment, on the early development of the child. Therefore, the information collected from the study has been from an educational and medical perspective, thereby aiding the understanding of these complex problems. At the parents request, information was gathered about certain teratogens, of which Lindane, an organophosphate, is highlighted.
PubMed ID
9098398 View in PubMed
Less detail

[The effectiveness of different methods of treating chorea-like hyperkineses in children with focal infections]

https://arctichealth.org/en/permalink/ahliterature43837
Source
Pediatr Akus Ginekol. 1971 Sep-Oct;71(5):15-6
Publication Type
Article