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It is important that the process goes quickly, isn't it?" A qualitative multi-country study of colorectal or lung cancer patients' narratives of the timeliness of diagnosis and quality of care.

https://arctichealth.org/en/permalink/ahliterature295134
Source
Eur J Oncol Nurs. 2018 Jun; 34:82-88
Publication Type
Journal Article
Personal Narratives
Date
Jun-2018
Author
Marlene Malmström
Birgit H Rasmussen
Britt-Marie Bernhardson
Senada Hajdarevic
Lars E Eriksson
Rikke Sand Andersen
John I MacArtney
Author Affiliation
The Institute for Palliative Care, Lund University and Region Skåne, Sweden; Lund University, Department of Health Sciences, Lund, Sweden. Electronic address: marlene.malmstrom@med.lu.se.
Source
Eur J Oncol Nurs. 2018 Jun; 34:82-88
Date
Jun-2018
Language
English
Publication Type
Journal Article
Personal Narratives
Keywords
Adult
Aged
Aged, 80 and over
Colorectal Neoplasms - diagnosis - psychology - therapy
Denmark
Early Diagnosis
England
Europe
Female
Humans
Lung Neoplasms - diagnosis - psychology - therapy
Male
Middle Aged
Patient Satisfaction - statistics & numerical data
Qualitative Research
Quality of Health Care - statistics & numerical data
Sweden
Time Factors
Abstract
The emphasis on early diagnosis to improve cancer survival has been a key factor in the development of cancer pathways across Europe. The aim of this analysis was to explore how the emphasis on early diagnosis and timely treatment is reflected in patient's accounts of care, from the first suspicion of colorectal or lung cancer to their treatment in Denmark, England and Sweden.
We recruited 155 patients in Denmark, England and Sweden who were within six months of being diagnosed with lung or colorectal cancer. Data were collected via semi-structured narrative interviews and analysed using a thematic approach.
Participants' accounts of quality of care were closely related to how quickly (or not) diagnosis, treatment and/or healthcare processes went. Kinetic metaphors as a description of care (such as treadmill) could be interpreted positively as participants were willing to forgo some degree of control and accept disruption to their lives to ensure more timely care. Drawing on wider cultural expectations of the benefits of diagnosing and treating cancer quickly, some participants were concerned that the waiting times between interventions might allow time for the cancer to grow.
Initiatives emphasising the timeliness of diagnosis and treatment are reflected in the ways some patients experience their care. However, these accounts were open to further contextualisation about what speed of healthcare processes meant for evaluating the quality of their care. Healthcare professionals could therefore be an important patient resource in providing reassurance and support about the timeliness of diagnosis or treatment.
PubMed ID
29784144 View in PubMed
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