BACKGROUND: Questionnaires on patient experience are increasingly used as quality indicators in the health services. There is limited evidence relating to alternative approaches to surveying patients within this field. We wanted to assess the effect of different methods of data collection on response rates and scores produced by a self-administered questionnaire on patient experience for adult inpatients receiving mental health care. MATERIAL AND METHODS: Data were collected from adult inpatients treated at three community mental health centres affiliated with the psychiatric clinic at Stavanger University hospital in spring 2005. The inclusion period was nine weeks, with three designs at consecutive time periods: A, a postal survey following discharge; B, a clinical survey before discharge; and C, patients given the choice of A or B. RESULTS: The response rate was highest with the postal design (38% vs. 24% and 23% respectively), but the differences were related to one additional reminder in the postal design. Out of the 11 questions, 4 had significantly poorer scores for the postal design. Questionnaire scores were significantly poorer with the postal design; 50 (on a scale from 0 to 100), vs. 59 and 63 in design B and C respectively. INTERPRETATION: The choice of data collection methods influences the results in user surveys in mental health care. This is an important consideration in the planning of studies and in the interpretation of the results, and in the comparison of results between studies using different data collection methods.
BACKGROUND: This study describes the development and testing of the Psychiatric In-Patient Experiences Questionnaire (PIPEQ). MATERIAL AND METHODS: Questionnaire development was based on a literature review, qualitative interviews with patients, and expert opinion. The questionnaire was tested in a postal survey among inpatients at three community health centres affiliated with the psychiatric clinic of Stavanger University hospital during spring 2005. 244 patients received the questionnaire; either they got the questionnaire by mail after discharge or at the institution before discharge. RESULTS: 68 (28%) patients responded to the questionnaire. Items had low levels of missing data. Factor analysis showed that 11 widely applicable items contribute to a measure of overall experiences. Item-total correlations ranged from 0.55 to 0.82. Cronbach's alpha exceeded the criterion of 0.9. Construct validity was supported by comparisons with variables related to patient experience, including overall satisfaction, extent of patient say in the medication decision, necessity of coercion, and mental health status. INTERPRETATION: The PIPEQ is a brief instrument that covers important aspects of health care experience for psychiatric inpatients and has good evidence for internal reliability and construct validity.
Over the period 1984-99, 400,000 Norwegian men and women aged 40-42 attended cardiovascular screenings carried out by the national health screening service. The data are available for research on application to the Norwegian Institute of Public Health. Details on the data and applications procedures are given in this article.
Most severe diseases cannot be prevented. The main reason is lack of information about their causes. The Norwegian Mother and Child Cohort Study (MoBa) is a population-based cohort with 100,000 children included from fetal life. The ambitious goal is to understand the causal chains behind diseases and the comprehensive data collection will allow many diseases to be addressed. The overall goal is to come up with good preventive measures. The purpose of this article is to inform about MoBa and to stimulate enhanced use of data collected during research.
In 2010 the Norwegian Cruciate Ligament Registry (NCLR) achieved status as a national medical quality registry. The study aimed at evaluating completeness of reporting on anterior cruciate ligament surgery to NCLF as compared to the Surgical Logbooks-Electronic Patient Journal (SL-EPJ) and the Norwegian Patient Registry (NPR).
Data were obtained electronically, by telephone or by manual counting from NCLR, SL-EPJ and NPR for 14 randomly selected hospitals in Norway for the period 01.10.05-28.02.06. SL-EPJ in hospitals were used as the gold standard.
According SL-EPJ, 202 operations were recorded in the study period. Among these operations seven were missing in NCLR and 21 in NPR. One private hospital only reported to NCLR and not to NPR in the study period, and according to SL-EPJ this hospital performed 19 of the 21 operations missing in NPR. Exclusion of this hospital leads to a high degree of completeness in both NCLR (97 %) and NPR (99 %) as compared to the gold standard.
The result confirms that NCLR has a high degree of registration completeness two years after establishment, and that data from the registry can be used in future research.