This article describes the experiences of a nurse and manager, winners of a joint travel award to explore stroke services in Finland. It aims to encourage nurses to undertake exchanges and visits, overseas or in their own countries.
In this paper I have described some of the recent developments in the growth of a patient/survivor movement in Canada. Arguments for the value of increased patient participation include providing a needed balance to the traditional medical perspective, addressing patient needs free from other vested interests, providing insights available only to cancer survivors, and facilitating empowerment. A number of current and potential difficulties related to increasing cancer survivor involvement have been raised, ranging from deliberate opposition from health administrators to disapproval from professionals of survivors' emotional expression to patient unwillingness. The greatest challenge is to move beyond token patient representation to substantive participation.
The purpose of the paper is to reflect on value dilemmas in mental health consumer-run organizations and to discuss implications for research, policy, and practice. We review the roots of consumer-run organizations in the self-help movement and the psychiatric survivor liberation movement, focusing on the distinctive values espoused by consumer-run organizations. We also discuss evidence-based and value-based approaches to mental health policy formulation and mental health reform, noting the particular importance of value-based approaches and the role that consumer-run organizations can play in mental health reform. Based on our experiences conducting a participatory action research study of four mental health consumer-run organizations, we identify and examine several value dilemmas, discuss the lessons that we learned about these value dilemmas, and note their implications for future directions in research, policy, and practice.
Patient organisations serve their members with information and support concerning a specific disease. In many cases they also contribute to research funding and lobby to improve the situation for their members. The larger group of patients an organisation claims to represent, the bigger their potential influence. Our hypothesis is that patient organisations exaggerate the number of persons affected with a specific disease. Prevalence figures from patient organisations in Sweden were collected via their own web sites. About 93 patient organisations were identified, 29 of which presented the estimates of disease occurrence used in this study. We calculated the probability for a person to have at least one disease and the proportion of the population not having any of the diseases listed. About 60% of the Swedish population have at least one disease covered by our sample of patient organisations. Nine tenths (87%) of the population would be ill if one assumes that an individual could only have one disease. Our rough estimates suggest that patient organisations exaggerate the number of ill persons. To render other messages on their agenda more trustworthy, we propose that some patient organisations moderate their prevalence and/or incidence figures.
At the initiative of the bodies and organizations of the Russian Agency for Consumer Surveillance, the interdepartmental commissions on sanitary purification and on production and consumption waste handling heard more than 2275 items on the subjects of the Russian Federation in 2007. In 2006-2007, in all the subjects of the Russian Federation work was under way with the local authorities to legalize or liquidate unauthorized sites of waste disposal in rural settlements. As compared with 2006, there was a reduction in both the number of unauthorized dumps from 11,062 to 9,069 and the area under them from 33,587.6 to 29,506 ha. According to the administrations of the Russian Agency for Consumer Surveillance, in 2007, the number of enterprises generating waste was 1,092,871, of them 91.2% of the enterprises were under the control of bodies and organizations of the Russian Agency for Consumer Surveillance. The largest number of enterprises (813,233) produces domestic waste and 173,272 enterprises generate factory waste; as for poultry farming and cattle breeding waste, sewage sludge, and agrochemicals, these accounted for less than 10%. As compared with 2006, the number of sludge traps, tailing pits, waste banks, terraces, ash-and-slad burrows, etc. increased and amounted to 2,338. The reduction in the volume of accumulated waste, by involving the latter into the economic turnover, by introducing and improving their processing technologies is urgent. The highest percentage of waste utilization was achieved by building enterprises (91%), followed by agricultural ones (77%). At the same time this index at the enterprising generating the bulk of waste, namely, at the minerals-extracting enterprises, is 39% as that in Russia. In 2007, pesticides and agrochemicals were kept at 5600 storage facilities, of which as many as 2180 have a sanitary-and-epidemiological opinion; 60% of the storage facilities have an organized control area.