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[A housing form for patients with chronic diseases based on their individual conditions].

https://arctichealth.org/en/permalink/ahliterature224480
Source
Lakartidningen. 1992 Jan 29;89(5):300-2
Publication Type
Article
Date
Jan-29-1992
Author
E. Svensson
Author Affiliation
Läkarstationen Heimdal, Borås.
Source
Lakartidningen. 1992 Jan 29;89(5):300-2
Date
Jan-29-1992
Language
Swedish
Publication Type
Article
Keywords
Activities of Daily Living
Chronic Disease - nursing
Disabled Persons
Home Care Services - organization & administration - supply & distribution
Housing
Humans
Sweden
PubMed ID
1531372 View in PubMed
Less detail

Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities.

https://arctichealth.org/en/permalink/ahliterature297921
Source
Int J Older People Nurs. 2018 Sep; 13(3):e12194
Publication Type
Journal Article
Date
Sep-2018
Author
Aleksandra Jarling
Ingela Rydström
Marie Ernsth-Bravell
Maria Nyström
Ann-Charlotte Dalheim-Englund
Author Affiliation
Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Boras, Sweden.
Source
Int J Older People Nurs. 2018 Sep; 13(3):e12194
Date
Sep-2018
Language
English
Publication Type
Journal Article
Keywords
Adaptation, Psychological
Aged
Aged, 80 and over
Aging - psychology
Chronic Disease - nursing - psychology
Culture
Dependency (Psychology)
Female
Home Care Services
Humans
Male
Paternalism
Personal Autonomy
Sweden
Abstract
To describe the meaning of the phenomenon home care from the perspective of older persons who live alone with multimorbidity.
In line with worldwide changing demographics, conditions for older people in need of home care are changing. In Sweden there is a stay-in-place policy and older people are expected to live and be cared for in their own home as long as possible. Home care, instituted by different laws, is a challenge affecting the older person when the private home becomes a workplace.
This study uses a qualitative design with a lifeworld approach.
The study having been conducted in Sweden in 2016, the researchers interviewed 12 older persons that live alone and receive home care. Data were analysed using qualitative content analysis.
The findings illustrate four sub-themes: adapting to a caring culture, feeling exposed, unable to influence care and forced relations. The overall theme reveals that older people experience a life-changing situation when receiving home care and they become a guest in their own home.
Becoming older with increased needs means to disrupt one's life when one's private home becomes a public arena. The gap between an older person's rights by law and the older person's experiences of receiving home care needs to be highlighted to meet the oncoming challenges in providing a home care that includes participation of the older themselves. Only then can care be offered that enables older people to have a sense of control and experience their home as their own.
The findings emphasise the need to view older people as being self-determinant and independent. Older people receiving home care need to be seen as individuals, and their entire life situation should be considered by also acknowledging the important role played by relatives and caregivers.
PubMed ID
29603651 View in PubMed
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[BEVA (Assessment Nursing Ward) relieves acute care beds. After 3 days patients are transferred to long-term care and home services].

https://arctichealth.org/en/permalink/ahliterature229428
Source
Vardfacket. 1990 Mar 22;14(6):9-12
Publication Type
Article
Date
Mar-22-1990

Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity.

https://arctichealth.org/en/permalink/ahliterature208914
Source
J Adv Nurs. 1997 Apr;25(4):738-45
Publication Type
Article
Date
Apr-1997
Author
A M Gravelle
Author Affiliation
Cystic Fibrosis Programme, British Columbia's Childrens Hospital, Vancouver, Canada.
Source
J Adv Nurs. 1997 Apr;25(4):738-45
Date
Apr-1997
Language
English
Publication Type
Article
Keywords
Adaptation, Psychological
Adolescent
Brain Diseases - nursing - psychology
British Columbia
Case Management
Child
Child, Preschool
Chronic Disease - nursing - psychology
Disease Progression
Female
Grief
Home Nursing - psychology
Humans
Male
Muscular Dystrophies - nursing - psychology
Parenting - psychology
Respite Care
Social Support
Women - psychology
Abstract
The qualitative study explored the day-to-day experiences of parents caring at home for a child with a progressive life-threatening illness at a certain point in their illness trajectory. This point in the trajectory is when the child lives with a complex chronic condition, and is in need of specialized and time-consuming care, but is not yet in a terminal phase. The naturalistic research design of phenomenology was chosen for the study's methodology. Parents' experiences of caring for their child were conceptualized as an ongoing process of 'facing adversity', as parents had continuously to redefine and then manage those changes resulting from the progressive nature of their child's condition. Concepts of normalization and chronic sorrow are considered in the conceptualization, as are the challenges of caregiving (particularly of mothers) who faced many hardships in their role, including the myriad of changes related to the increased burden of care. Implications for nursing practice are identified.
PubMed ID
9104669 View in PubMed
Less detail

Caring relationship in a context: fieldwork in a medical ward.

https://arctichealth.org/en/permalink/ahliterature78239
Source
Int J Nurs Pract. 2007 Apr;13(2):100-6
Publication Type
Article
Date
Apr-2007
Author
Berg Linda
Skott Carola
Danielson Ella
Author Affiliation
The Sahlgrenska Academy at Göteborg University, Institute of Health and Care Sciences, Göteborg, Sweden. linda.berg@fhs.gu.se
Source
Int J Nurs Pract. 2007 Apr;13(2):100-6
Date
Apr-2007
Language
English
Publication Type
Article
Keywords
Adult
Aged
Aged, 80 and over
Attitude of Health Personnel
Attitude to Health
Chronic Disease - nursing - psychology
Communication
Cooperative Behavior
Empathy
Female
Hospital Departments
Hospitals, County
Humans
Internal Medicine
Long-Term Care - psychology
Male
Middle Aged
Nurse's Role - psychology
Nurse-Patient Relations
Nursing Methodology Research
Nursing Staff, Hospital - psychology
Sweden
Trust - psychology
Abstract
The aim of this study was to investigate how the caring relationship is formed in a medical context. The data were collected using participant observation with field notes and analysed by an interpretive phenomenological method. The context circumstances in a medical milieu demanded exacting efficiency and risks to oppress the caring relationship, subsequently causing demands in nursing practice. Three themes of the caring relationship were identified as respect for each other and for themselves, responsibility to reach out to each other and engagement. Patients' and nurses' awareness in encounters drove the forming of a caring relationship that went beyond the individual nurse and patient. This study implicates the importance of an understanding of how context circumstances create the foundation of the caring relationship.
PubMed ID
17394517 View in PubMed
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Categorical service allocation and barriers to care for children with chronic conditions.

https://arctichealth.org/en/permalink/ahliterature172155
Source
Can J Nurs Res. 2005 Sep;37(3):86-102
Publication Type
Article
Date
Sep-2005
Author
Lynne D Ray
Author Affiliation
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada. Lynne.Ray@ualberta.ca
Source
Can J Nurs Res. 2005 Sep;37(3):86-102
Date
Sep-2005
Language
English
Publication Type
Article
Keywords
Adaptation, Psychological
Canada
Child
Chronic Disease - nursing
Community Health Services - organization & administration
Geography
Humans
Nursing Administration Research
Pediatric Nursing
Resource Allocation - methods - trends
Abstract
Parents raising children with chronic conditions face the challenge of locating and coordinating appropriate community-based resources and services for their child. The purpose of this secondary analysis was to determine parents' view of the mechanisms used to allocate health, education, and social services to children with chronic illness and disability and their caregiving families. A thematic analysis was conducted on data from interviews with 30 mothers and 13 fathers. These parents described 11 mechanisms that were used to determine eligibility and/or to ration services: diagnosis, age, technology dependence, severity, functional ability, guardianship status, geographic location, financial resources, judged parental coping, failure to inform parents about available services, and cyclical funding. These mechanisms were complex, inconsistent, and subject to change. Mechanisms that are integrated, proactive, flexible, and fair are needed to reduce parents' workload and to ensure more equitable allocation of services.
PubMed ID
16268091 View in PubMed
Less detail
Source
Alta RN. 2006 Sep;62(7):38
Publication Type
Article
Date
Sep-2006
Author
Mary-Anne Robinson
Author Affiliation
mrobinson@nurses.ab.ca
Source
Alta RN. 2006 Sep;62(7):38
Date
Sep-2006
Language
English
Publication Type
Article
Keywords
Alberta
Chronic Disease - nursing
Disease Management
Humans
Nurse's Role
PubMed ID
17051930 View in PubMed
Less detail

Child in hospital: family experiences and expectations of how nurses can promote family health.

https://arctichealth.org/en/permalink/ahliterature176477
Source
J Clin Nurs. 2005 Feb;14(2):212-22
Publication Type
Article
Date
Feb-2005
Author
Hanna Hopia
Patricia S Tomlinson
Eija Paavilainen
Päivi Astedt-Kurki
Author Affiliation
Department of Nursing Science, University of Tampere, Tampere, Finland. hanna.hopia@jypoly.fi
Source
J Clin Nurs. 2005 Feb;14(2):212-22
Date
Feb-2005
Language
English
Publication Type
Article
Keywords
Adaptation, Psychological
Adult
Anxiety - prevention & control - psychology
Attitude to Health
Child
Child, Hospitalized - psychology
Chronic Disease - nursing - psychology
Cost of Illness
Family - psychology
Family Health
Family Nursing - methods
Finland
Health Promotion - organization & administration
Health services needs and demand
Humans
Middle Aged
Models, Nursing
Models, Psychological
Nurse's Role
Nursing Methodology Research
Nursing Staff, Hospital - organization & administration - psychology
Professional-Family Relations
Questionnaires
Social Support
Stress, Psychological - prevention & control - psychology
Abstract
This study set out to explore, from the family's point of view, ways in which nursing staff can promote family health during the child's hospital stay.
Having a child in hospital is a major source of stress and anxiety for the whole family. Earlier studies have described parental coping strategies, ways to strengthen those strategies and to support parental participation in child care, but no one has studied the promotion of family health during the child's hospitalization from the family's point of view.
Interviews were conducted in 2002 with 29 families who had a child with a chronic illness which were receiving or had received treatment on the paediatric wards of two Finnish hospitals.
Data analysis was based on the grounded theory method, proceeding to the stage of axial coding. Data collection and analysis phases proceeded simultaneously.
Five domains were distinguished in the promotion of family health: (1) reinforcing parenthood, (2) looking after the child's welfare, (3) sharing the emotional burden, (4) supporting everyday coping and (5) creating a confidential care relationship.
The results strengthen the knowledge base of family nursing by showing how nursing staff can promote family health during the child's hospital stay.
The results have a number of practical applications for nursing, both for clinical practice and research. The results can be used in paediatric hospital wards caring for chronically ill children and their families. The five domains of family health promotion described here should be tested in other paediatric wards and in other geographical locations.
Notes
Comment In: J Clin Nurs. 2005 May;14(5):650-115840081
Comment In: J Clin Nurs. 2006 Jan;15(1):111-316390531
PubMed ID
15669930 View in PubMed
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[Chronic patient bed occupancy in a medical department. Review of a 5-year period in the County of Copenhagen].

https://arctichealth.org/en/permalink/ahliterature250057
Source
Ugeskr Laeger. 1977 Mar 21;139(12):727-31
Publication Type
Article
Date
Mar-21-1977

71 records – page 1 of 8.