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Assessment of sun-related behaviour in individuals with dysplastic naevus syndrome: a comparison between diary recordings and questionnaire responses.

https://arctichealth.org/en/permalink/ahliterature21983
Source
Melanoma Res. 1997 Aug;7(4):347-51
Publication Type
Article
Date
Aug-1997
Author
Y. Brandberg
P O Sjödén
I. Rosdahl
Author Affiliation
Department of Oncology, Karolinska Hospital, Stockholm, Sweden.
Source
Melanoma Res. 1997 Aug;7(4):347-51
Date
Aug-1997
Language
English
Publication Type
Article
Keywords
Adolescent
Adult
Behavior
Comparative Study
Dysplastic Nevus Syndrome
Female
Health Knowledge, Attitudes, Practice
Heliotherapy
Humans
Male
Middle Aged
Risk factors
Sunburn
Sunlight - adverse effects
Abstract
In Sweden, individuals with dysplastic naevus syndrome (DNS-D2), a high risk group for malignant melanoma, are regularly screened and informed about self-examination and sun protection. During the summer of 1994, 54 out of 65 consecutive patients completed 1 month of daily self-recordings of sun-related behaviour. The diary report was compared with questionnaire responses obtained 6 months later concerning sun-related behaviour, both habitual and during the month of self-recording. The correspondence between the sun-related behaviour recorded in the diary and given in response to the questionnaire was fairly high, but 48% underestimated and 29% overestimated their actual number of sunbathing occasions in the questionnaire. Few patients indicated habitual high frequencies of sunbathing, although some of them recorded six or more occasions during 1 month in the diary. Those who recorded multiple sunburns reported the highest number of sunburns in the questionnaire. Patients who scored high on sunbed use also recorded high numbers of sunbathing occasions. Diaries should be used when detailed information about the magnitude of sun-related behaviour is essential, whereas questionnaires should be sufficient in studies aiming to differentiate between high and low frequencies of such behaviour.
PubMed ID
9293486 View in PubMed
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The EORTC ophthalmic oncology quality of life questionnaire module (EORTC QLQ-OPT30). Development and pre-testing (Phase I-III).

https://arctichealth.org/en/permalink/ahliterature17873
Source
Eye. 2004 Mar;18(3):283-9
Publication Type
Article
Date
Mar-2004
Author
Y. Brandberg
B. Damato
T. Kivelä
E. Kock
S. Seregard
Author Affiliation
Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden. yvonne.brandberg@onkpat.ki.se
Source
Eye. 2004 Mar;18(3):283-9
Date
Mar-2004
Language
English
Publication Type
Article
Keywords
Adult
Aged
Aged, 80 and over
Automobile Driving
Eye Diseases - complications
Female
Headache - complications
Humans
Male
Melanoma - complications - therapy
Middle Aged
Quality of Life
Questionnaires
Reading
Recurrence
Research Support, Non-U.S. Gov't
Uveal Neoplasms - complications - therapy
Vision Disorders - complications
Abstract
AIMS: The research objective was to develop a questionnaire module to be used, in addition to the European Organisation into Research and Treatment of Cancer (EORTC) QLQ-C30, for measurement of quality of life (QL) among patients with uveal melanoma treated with methods such as transpupillary thermotherapy, plaque radiotherapy, proton beam radiotherapy, local resection, and enucleation. The present paper describes the development through Phases I-III. METHODS: Relevant QL issues were generated from literature search and from interviews with ophthalmologists, nurses, and patients with uveal melanoma representing three major treatment options: enucleation, plaque brachytherapy, and proton beam therapy. RESULTS: The provisional module was pretested in 61 patients from Finland, Sweden, and UK. The EORTC QLQ-OPT30 module consists of 26 items for all patients, and four additional items for patients receiving treatments other than enucleation. It measures ocular irritation, vision impairment, headache, worry about recurrent disease, problems with driving, problems with appearance functional problems due to vision impairment, and problems reading. CONCLUSIONS: Several treatment modalities are available for uveal melanoma. There is limited knowledge of the impact of these treatments on QL in the long and short term. We hope that the OPT30 module together with the EORTC QLQ-C30 core questionnaire can be a useful tool in research.
PubMed ID
15004578 View in PubMed
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Factors related to non-attendance in a population based melanoma screening program.

https://arctichealth.org/en/permalink/ahliterature21936
Source
Psychooncology. 1997 Sep;6(3):218-26
Publication Type
Article
Date
Sep-1997
Author
M. Bergenmar
S. Törnberg
Y. Brandberg
Author Affiliation
Department of Oncology, Radiumhemmet, Karolinska Hospital, Stockholm, Sweden.
Source
Psychooncology. 1997 Sep;6(3):218-26
Date
Sep-1997
Language
English
Publication Type
Article
Keywords
Adult
Analysis of Variance
Attitude to Health
Case-Control Studies
Chi-Square Distribution
Consumer Participation - psychology
Cross-Sectional Studies
Disease Susceptibility
Female
Health Knowledge, Attitudes, Practice
Health Promotion - methods
Health Services Accessibility
Health Surveys
Humans
Male
Mass Screening - methods - psychology - statistics & numerical data
Melanoma - prevention & control - psychology
Middle Aged
Sex Factors
Skin Neoplasms - prevention & control - psychology
Sweden
Abstract
A total of 127 non-attenders in a population-based melanoma screening program, 58 women and 69 men, were asked in a telephone interview about reasons for non-attendance. Of those, 105 also completed a mailed questionnaire, measuring perceived susceptibility to and knowledge about melanoma. During the same period, attenders (n = 286) at the screening clinic completed the same questionnaire. The most commonly reported reasons for non-attendance were 'I forgot about it', 'lack of time' and 'no need for examination'. A majority of non-attenders held a positive attitude towards preventive programs in general and to the present invitation. Most of the improvements suggested by the non-attenders were strategies to reduce practical barriers. Non-attenders scored lower than attenders on perceived susceptibility. High and equal levels of knowledge about melanoma were found among attenders and non-attenders. Men were more likely to be non-attenders. Higher perceived susceptibility and a higher level of knowledge about melanoma were found among women as compared to men. The results suggests that there is potential to increase attendance in future melanoma programs by reducing practical barriers.
PubMed ID
9313288 View in PubMed
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Health-related quality of life during hormone therapy after breast cancer: a randomized trial.

https://arctichealth.org/en/permalink/ahliterature145131
Source
Climacteric. 2011 Feb;14(1):164-70
Publication Type
Article
Date
Feb-2011
Author
M. Fahlén
B. Wallberg
E. von Schoultz
K. Carlström
G. Svensson
N. Wilking
Y. Brandberg
Author Affiliation
Department of Surgery, Capio St Görans Hospital, Stockholm, Sweden.
Source
Climacteric. 2011 Feb;14(1):164-70
Date
Feb-2011
Language
English
Publication Type
Article
Keywords
Adult
Aged
Anxiety - drug therapy
Breast Neoplasms - psychology - therapy
Cognition
Depression - drug therapy
Fatigue - drug therapy
Female
Hormone Replacement Therapy
Humans
Middle Aged
Prospective Studies
Quality of Life
Questionnaires
Selective Estrogen Receptor Modulators - therapeutic use
Sleep Initiation and Maintenance Disorders - drug therapy
Sweden
Tamoxifen - therapeutic use
Abstract
To study the effects of menopausal hormone therapy (HT) on health-related quality of life in women after breast cancer.
In the Stockholm trial, breast cancer survivors were randomized to HT (estradiol and progestogen) or to a control group (no treatment). A subgroup of 75 women was studied (38 with HT, 37 controls). Fifty patients were on concomitant tamoxifen. Patients completed three questionnaires (EORTC QLQ C-30, EORTC QLQ-BR 23 and the Hospital Anxiety and Depression Scale (HADS)) during 1 year of treatment.
A significant group-by-time interaction was found for improvement of insomnia in the HT group (p?
PubMed ID
20196640 View in PubMed
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High satisfaction rate ten years after bilateral prophylactic mastectomy - a longitudinal study.

https://arctichealth.org/en/permalink/ahliterature96483
Source
Eur J Cancer Care (Engl). 2010 Jun 29;
Publication Type
Article
Date
Jun-29-2010
Author
E. Wasteson
K. Sandelin
Y. Brandberg
M. Wickman
B. Arver
Author Affiliation
Division of Psychology, Department of Social Sciences, Mid Sweden University, Campus Ostersund, Ostersund, Sweden, and Department of Cancer Research and Molecular Medicine, Faculty of Medicine, Norwegian university of Science and Technology (NTNU), Trondheim, Norway.
Source
Eur J Cancer Care (Engl). 2010 Jun 29;
Date
Jun-29-2010
Language
English
Publication Type
Article
Abstract
WASTESON E., SANDELIN K., BRANDBERG Y., WICKMAN M. & ARVER B. (2010) European Journal of Cancer Care High satisfaction rate ten years after bilateral prophylactic mastectomy - a longitudinal study Women from families with an increased risk for breast/ovarian cancer have undergone bilateral prophylactic mastectomy (BPM) since the early 1990s at the Karolinska University Hospital in Sweden. Perceptions of BPM as reported by the first women who underwent the procedure have previously been evaluated on a short-term basis (1-3 years). The present study aims to evaluate the long-term (10 years) physical and psychological consequences of BPM in the same cohort of women. Some of the very first women to undergo BPM participated in the present interview study (n= 13). The semi-structured interviews focused on the women's long-term experiences related to BPM and immediate breast reconstruction. Overall, the women were satisfied with their decision to undergo BPM and perceived a negligible remaining risk of getting breast cancer. For most women, the operation had not resulted in changes in family life or lifestyle (n= 8), although some described that the relationship with their spouse was affected (8/13), either in a negative (n= 5) or positive (n= 3) way. The cosmetic results were mainly positive (n= 10). Recurrent counselling and support during the whole process of decision, treatment and follow up is recommended.
PubMed ID
20597955 View in PubMed
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Information to patients with malignant melanoma: a randomized group study.

https://arctichealth.org/en/permalink/ahliterature217999
Source
Patient Educ Couns. 1994 Jun;23(2):97-105
Publication Type
Article
Date
Jun-1994
Author
Y. Brandberg
M. Bergenmar
C. Bolund
H. Michelson
E. Månsson-Brahme
U. Ringborg
P O Sjödén
Author Affiliation
Department of Oncology, Karolinska Hospital, Stockholm, Sweden.
Source
Patient Educ Couns. 1994 Jun;23(2):97-105
Date
Jun-1994
Language
English
Publication Type
Article
Keywords
Analysis of Variance
Educational Measurement
Female
Follow-Up Studies
Humans
Male
Melanoma - psychology
Middle Aged
Nursing Methodology Research
Pamphlets
Patient Education as Topic - methods
Patient Satisfaction - statistics & numerical data
Program Evaluation
Questionnaires
Skin Neoplasms - psychology
Sweden
Teaching Materials
Abstract
An information programme for patients with cutaneous malignant melanoma, Stage 1, aiming at increasing satisfaction with information, was carried out at the Department of Oncology (Radiumhemmet). The programme consisted of a group meeting and a brochure. A total of 231 consecutive patients were included, and 149 (65%) reported interest in participation and were randomized to the Information group (n = 77) or to the Control group. A total of 67 patients (29%) were not interested (the NI-group). To evaluate the programme, the patients in the three groups completed questionnaires regarding satisfaction with information, knowledge of melanoma and psychological and psychosomatic variables before randomization and at the first visit for follow-up at Radiumhemmet. After the information programme, the Information group was significantly more satisfied with information, had a higher level of knowledge and a lower proportion requested further information as compared with the Control group. No differences were found on the psychological and psychosomatic variables.
PubMed ID
21207908 View in PubMed
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Multiple chronic health problems are negatively associated with health related quality of life (HRQoL) irrespective of age.

https://arctichealth.org/en/permalink/ahliterature19750
Source
Qual Life Res. 2000;9(10):1093-104
Publication Type
Article
Date
2000
Author
H. Michelson
C. Bolund
Y. Brandberg
Author Affiliation
Department of Oncology, Radiumhemmet, Stockholm, Sweden. Helena.Michelson@onkpat.ki.se
Source
Qual Life Res. 2000;9(10):1093-104
Date
2000
Language
English
Publication Type
Article
Keywords
Adolescent
Adult
Age Factors
Aged
Chronic Disease - classification - epidemiology - psychology
Employment - statistics & numerical data
Female
Humans
Income - statistics & numerical data
Male
Marital Status - statistics & numerical data
Middle Aged
Quality of Life
Questionnaires
Random Allocation
Registries
Research Support, Non-U.S. Gov't
Sampling Studies
Socioeconomic Factors
Survivors - psychology
Sweden - epidemiology
Abstract
PURPOSE: To examine HRQoL measured by EORTC QLQ-C30 with respect to an increasing number of self-reported chronic health problems in the general Swedish population and to study the association between HRQoL, chronic health problems and age, gender, income, marital status and employment status. METHOD: A postal survey among a large random sample of 4000 adults aged 18-79 years. The study material contained EORTC QLQ-C30 core questionnaire supplemented by a sociodemographic questionnaire including questions about 13 chronic health problems of which four categories, 'No', 'Few', 'Some' or 'A lot of chronic health problems were constructed. RESULTS: Multiple chronic health problems were significantly associated with reduced HRQoL. The increased number of chronic health problems was also associated with age. When the number of chronic health problems was accounted for, the influence of age diminished. Low income and unemployment were associated with greater decline in HRQoL with respect to increasing number of problems among the respondents in working age. CONCLUSION: The impact of increased number of chronic health problems had varying consequences in different age groups. Moreover, sociodemographic and economic factors showed to interact differently with chronic health problems and HRQoL in various age groups. It appears from our results that an assessment and a careful consideration of these factors will be valuable in order to facilitate the interpretation of the effects of cancer and treatment on long-term HRQoL of cancer patients.
PubMed ID
11401042 View in PubMed
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Nonattendance in the Stockholm mammography screening trial: relative mortality and reasons for nonattendance.

https://arctichealth.org/en/permalink/ahliterature23111
Source
Breast Cancer Res Treat. 1995 Sep;35(3):267-75
Publication Type
Article
Date
Sep-1995
Author
E. Lidbrink
J. Frisell
Y. Brandberg
I. Rosendahl
L E Rutqvist
Author Affiliation
Department of Oncology, Söder Hospital, Stockholm, Sweden.
Source
Breast Cancer Res Treat. 1995 Sep;35(3):267-75
Date
Sep-1995
Language
English
Publication Type
Article
Keywords
Adult
Breast Neoplasms - mortality - pathology - prevention & control - radiography
Comparative Study
Female
Humans
Life tables
Mammography
Mass Screening
Middle Aged
Neoplasm Staging
Survival Rate
Sweden
Time Factors
Treatment Refusal
Abstract
The first objective of this study was to analyze the survival rate in a group of 69 breast cancers detected among nonattenders in a randomized mammographic screening trial in relation to 142 clinically detected cancers in a nonscreened control population. By analyzing the cancers of the nonattenders we identified two subgroups, one (A) had actively avoided mammography, had cancers in more advanced stages on diagnosis, and had significantly higher mortality from breast cancer than the control group (p = 0.003). The second subgroup (B) had mammography done outside the screening program. This subgroup had a nonsignificant, slightly better survival (p = 0.19) compared to the control group. Concerning stage the cancers in group B were similar to the cancers by the screening program. The second objective was to analyze women's reasons for nonattendance in the screening program. We interviewed 200 randomly selected nonattenders; 33% stated that they never could imaging having mammography (definite nonattenders), 29.5% that they for various reasons had missed the mammography but could imagine having it next time (possible future attenders), and 32% had been examined outside the program. Reasons for nonattendance included disinterest, medical problems, and fear of X-rays. From this interview investigation we believe that the subgroup of definite nonattenders (33%) is difficult to influence. The second subgroup classified as possible future attenders (29.5%) we believe can be influenced by more information and a new opportunity to receive mammography, i.e., a reminder letter. The third subgroup, those examined outside the screening program (32%) were aware of the benefit of mammography, taking action on their own.(ABSTRACT TRUNCATED AT 250 WORDS)
PubMed ID
7579497 View in PubMed
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[No symptoms of unnecessary anxiety or false confidence among participants of screening for malignant melanoma]

https://arctichealth.org/en/permalink/ahliterature24354
Source
Lakartidningen. 1992 Sep 2;89(36):2827
Publication Type
Article
Date
Sep-2-1992
Author
Y. Brandberg
O. Sjödén
H. Michelson
Author Affiliation
Psykosociala enheten, Radiumhemmet, Stockholm.
Source
Lakartidningen. 1992 Sep 2;89(36):2827
Date
Sep-2-1992
Language
Swedish
Publication Type
Article
Keywords
Adult
Attitude to Health
Humans
Mass Screening
Melanoma - prevention & control - psychology
Middle Aged
Questionnaires
Skin Neoplasms - prevention & control - psychology
Sweden
PubMed ID
1405875 View in PubMed
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Perceived susceptibility to and knowledge of malignant melanoma: screening participants vs the general population.

https://arctichealth.org/en/permalink/ahliterature22724
Source
Prev Med. 1996 Mar-Apr;25(2):170-7
Publication Type
Article
Author
Y. Brandberg
C. Bolund
H. Michelson
E. Mansson-Brahme
U. Ringborg
P O Sjödén
Author Affiliation
Department of Oncology, Karolinska Hospital, Stockholm, Sweden.
Source
Prev Med. 1996 Mar-Apr;25(2):170-7
Language
English
Publication Type
Article
Keywords
Adolescent
Adult
Aged
Female
Health Knowledge, Attitudes, Practice
Humans
Male
Mass Media
Mass Screening
Melanoma - etiology - prevention & control
Middle Aged
Nevus - complications
Questionnaires
Risk factors
Sex Factors
Skin Neoplasms - etiology - prevention & control
Sweden
Abstract
BACKGROUND. The incidence of and mortality from melanoma are increasing and no effective treatment for disseminated disease exists. Studies of factors influencing participation in prevention and early detection of melanoma are therefore warranted. In the present study, participants in public melanoma screening were compared with a sample of the Swedish population with respect to concern for nevi, perceived risk for melanoma, knowledge about melanoma, and sources of information. Gender differences were studied. METHOD. Consecutive participants in public melanoma screening (Participants) received questionnaires at registration for skin examination; 235 (96%) responded. Questionnaires were distributed by mail to a random sample of the Swedish population (Public); 1,070 (63%) responded. RESULTS. Participants were more concerned about nevi, and a higher proportion had previously consulted physicians for suspected lesions compared with the Public. Participants were better informed in terms of the number of sources of information and knowledge of melanoma and risk factors. There were no differences regarding perceived risk and there was a mixed picture concerning knowledge of sun effects and sun protection. Gender differences were found for perceived susceptibility to, knowledge of, and number of sources of information about melanoma, favoring women. CONCLUSION. The preventive aspects of screening as well as the good prognosis of melanoma detected early should be stressed in invitations to skin cancer screening. New approaches for reaching men are warranted.
PubMed ID
8860282 View in PubMed
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18 records – page 1 of 2.