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Clinic-based needs assessment of individuals with multiple sclerosis and significant others: implications for program planning--psychological needs.

https://arctichealth.org/en/permalink/ahliterature184372
Source
Rehabil Nurs. 2003 Jul-Aug;28(4):109-16
Publication Type
Article
Author
Cathy-Lee Benbow
Wilma J Koopman
Author Affiliation
MS Clinic, London Health Sciences Centre, 339 Windermere Road, London, ON N6A 5A5, Canada. cathylee.benbow@lhse.on.ca
Source
Rehabil Nurs. 2003 Jul-Aug;28(4):109-16
Language
English
Publication Type
Article
Keywords
Activities of Daily Living
Adaptation, Psychological
Adult
Aged
Aged, 80 and over
Attitude to Health
Family - psychology
Female
Focus Groups
Hospitals, University
Humans
Male
Middle Aged
Multiple Sclerosis - physiopathology - psychology - rehabilitation
Needs Assessment
Nursing Assessment
Nursing Methodology Research
Ontario
Patient Care Planning
Patient care team
Questionnaires
Social Support
Abstract
The purpose of this study was to identify the psychological/psychosocial needs of patients with multiple sclerosis (MS) and their significant others (SOs) who attended an MS clinic. A quantitative questionnaire, developed from focus groups, consisted of 23 needs statements in the psychological/psychosocial needs category. Participants were randomly selected from the clinic's database. The questionnaire was completed by 353 MS patients and 240 significant others. Content analysis of the psychological category produced four themes: general psychological needs, psychological needs related to specific resource needs, psychological needs related to interaction with the medical community, and psychological needs statements displaying a difference between MS and SO responses. The data indicate the importance of psychological intervention in the care of MS patients and its implications for program planning.
PubMed ID
12875143 View in PubMed
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Top 10 needs of people with multiple sclerosis and their significant others.

https://arctichealth.org/en/permalink/ahliterature166851
Source
J Neurosci Nurs. 2006 Oct;38(5):369-73
Publication Type
Article
Date
Oct-2006
Author
Wilma J Koopman
Cathy-Lee Benbow
Margaret Vandervoort
Author Affiliation
Neuromuscular Clinic, Department of Clinical Neurological Sciences, London Health Sciences Centre, London, ON, Canada. wilma.koopman@lhsc.on.ca
Source
J Neurosci Nurs. 2006 Oct;38(5):369-73
Date
Oct-2006
Language
English
Publication Type
Article
Keywords
Adult
Caregivers - psychology
Female
Focus Groups
Humans
Male
Middle Aged
Multiple Sclerosis - psychology - therapy
Needs Assessment
Ontario
Professional-Patient Relations
Social Support
Abstract
The purpose of this study was to identify the needs of patients with multiple sclerosis (MS) and their significant others. A quantitative questionnaire, developed from focus groups and consisting of 75 needs statements, was administered to 353 MS patients and 240 significant others. Analysis produced rankings of the 10 most important needs of both groups. Rankings by the MS patients and significant others were similar. Three themes emerged. Psychosocial and other personal needs (relationship with physicians, the MS healthcare team, family, and friends) were ranked with high frequency. Information needs (information regarding MS or available support) and financial security were also ranked as important. The data validate the importance of interdisciplinary care for the MS population.
PubMed ID
17069266 View in PubMed
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