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Parents' views on information in childhood cancer care.

https://arctichealth.org/en/permalink/ahliterature139048
Source
Eur J Oncol Nurs. 2011 Sep;15(4):290-5
Publication Type
Article
Date
Sep-2011
Author
Anne Kästel
Karin Enskär
Olle Björk
Author Affiliation
The Red Cross University College, Karolinska University Hospital, Solna, Stockholm, Sweden. kasa@rkh.se
Source
Eur J Oncol Nurs. 2011 Sep;15(4):290-5
Date
Sep-2011
Language
English
Publication Type
Article
Keywords
Adult
Child
Child Health Services
Communication Barriers
Delivery of Health Care
Female
Humans
Male
Neoplasms - nursing
Nursing Process
Parent-Child Relations
Parents
Sweden
Teaching Materials
Abstract
The aim of the study is to highlight parents' views on information in childhood cancer care.
A qualitative design, appropriate to gain a holistic view, has been chosen. Eight families with children diagnosed with cancer, of various ages and gender and from various backgrounds, participated in five interviews each during the first year of the child's illness.
If the parents' needs were fulfilled, they were better equipped to handle the illness of their child, which is totally dependant on how the matter of information is dealt with. Information is a complex and demanding issue for the persons involved and the families' views were divergent in this area. Sometimes they seemed to obtain the information successfully and sometimes there were great problems in this respect. Therefore their preferences must be considered.
There has to be an improvement from the aspects of what, when and how information is provided. The major findings of this study indicate that the families need better support and more distinct instructions to be able to cope with the situation.
PubMed ID
21109490 View in PubMed
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