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The Russian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295147
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):339-346
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Irina Nikishina
Ekaterina Alexeeva
Svetlana Arsenyeva
Svetlana Salugina
Maria Kaleda
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Pediatric Department, V.A. Nasonova Research Institute of Rheumatology, Moscow, Kashirskoe shosse 34A, 115522, Russian Federation. irpetnik_vip@mail.ru.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):339-346
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Disability Evaluation
Female
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Russia
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Russian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (25% systemic, 19% oligoarticular, 38% RF-negative polyarthritis, 18% other categories) and 198 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Russian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637369 View in PubMed
Less detail

The Swedish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295148
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):371-377
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Maria Ekelund
Lillemor Berntson
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Department of Pediatrics, Ryhov County Hospital, Jonkoping, 551 85, Sweden. maria.ekelund@rjl.se.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):371-377
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Disability Evaluation
Female
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Sweden
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Swedish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 68 JIA patients (8.8% systemic, 44.1% oligoarticular, 13.2% RF negative polyarthritis, 33.9% other categories) and 76 healthy children, were enrolled in two centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Swedish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637346 View in PubMed
Less detail

The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295149
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):131-138
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Susan Nielsen
Troels Herlin
Anne Estmann Christensen
Marek Zak
Charlotte Myrup
Mia Glerup
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Paediatric Rheumatology Unit, Børnereumatologiskambulatorium, afsnit 4272, BørneUngeKlinikken, Juliane Marie Centret, Rigshospitalet, Blegdamsvej 9, 2100, Copenhagen, Denmark. rh04430@rh.dk.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):131-138
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Denmark
Disability Evaluation
Female
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9% systemic, 35% oligoarticular, 22.1% RF negative polyarthritis, 35% other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637339 View in PubMed
Less detail

The Finnish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295150
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):179-186
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Pekka Lahdenne
Kristiina Aalto
Katariina Rebane
Paula Vahasalo
Anne Kristiina Putto-Laurila
Merja Malin
Liisa Kroger
Hanna Saila
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Pediatric Rheumatology, Children's Hospital, Helsinki University Central Hospital, Stenbackink, 11, 00290, Helsinki, Finland. pekka.lahdenne@hus.fi.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):179-186
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Disability Evaluation
Female
Finland
Health status
Humans
Male
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Finnish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 173 JIA patients (1.2% systemic, 46.2% oligoarticular, 39.9% RF-negative polyarthritis, 12.7% other categories) and 100 healthy children, were enrolled in five paediatric rheumatology centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Finnish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637332 View in PubMed
Less detail

The Norwegian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

https://arctichealth.org/en/permalink/ahliterature295151
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):291-298
Publication Type
Journal Article
Multicenter Study
Validation Studies
Date
Apr-2018
Author
Berit Flato
Marite Rygg
Ellen Berit Nordal
Mona Røisland
Hanne Beate Ødegård
Gry Børmark Hoftun
Nils Thomas Songstad
Alessandro Consolaro
Francesca Bovis
Nicolino Ruperto
Author Affiliation
Department of Rheumatology and Medical Faculty, Oslo University Hospital and University of Oslo, Postboks 4950, Nydalen, 0424, Oslo, Norway. berit.flato@medisin.uio.no.
Source
Rheumatol Int. 2018 Apr; 38(Suppl 1):291-298
Date
Apr-2018
Language
English
Publication Type
Journal Article
Multicenter Study
Validation Studies
Keywords
Adolescent
Age of Onset
Arthritis, Juvenile - diagnosis - physiopathology - psychology - therapy
Case-Control Studies
Child
Child, Preschool
Cultural Characteristics
Disability Evaluation
Female
Health status
Humans
Male
Norway
Parents - psychology
Patient Reported Outcome Measures
Patients - psychology
Predictive value of tests
Prognosis
Psychometrics
Quality of Life
Reproducibility of Results
Rheumatology - methods
Translating
Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Norwegian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 301 JIA patients (3.3% systemic, 41.2% oligoarticular, 25.9% RF negative polyarthritis, and 29.6% other categories) and 74 healthy children were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Norwegian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Notes
Cites: Arthritis Rheum. 2002 Mar;46(3):714-25 PMID 11920407
Cites: Arthritis Rheum. 1997 Jul;40(7):1202-9 PMID 9214419
Cites: Arch Dis Child. 2011 Jun;96(6):596-601 PMID 21317432
Cites: J Rheumatol. 2010 Jul;37(7):1534-41 PMID 20551105
Cites: J Rheumatol. 1998 Oct;25(10):1991-4 PMID 9779856
Cites: Arthritis Rheum. 1991 Jul;34(7):873-80 PMID 2059234
Cites: Pediatr Rheumatol Online J. 2012 Nov 20;10(1):39 PMID 23164467
Cites: Arthritis Rheum. 2007 Aug 15;57(6):913-20 PMID 17665481
Cites: Arthritis Rheum. 1989 Nov;32(11):1390-5 PMID 2818655
Cites: J Rheumatol. 2011 May;38(5):938-53 PMID 21362761
Cites: J Rheumatol. 2004 Feb;31(2):390-2 PMID 14760812
Cites: Arthritis Rheum. 1994 Dec;37(12):1761-9 PMID 7986222
Cites: J Rheumatol. 1997 Apr;24(4):738-46 PMID 9101511
Cites: Arthritis Rheum. 2011 Sep;63(9):2809-18 PMID 21560116
Cites: J Rheumatol. 2012 Apr;39(4):856-63 PMID 22298905
PubMed ID
29637327 View in PubMed
Less detail

Assessment of social anxiety in first episode psychosis using the Liebowitz Social Anxiety scale as a self-report measure.

https://arctichealth.org/en/permalink/ahliterature139685
Source
Eur Psychiatry. 2011 Mar;26(2):115-21
Publication Type
Article
Date
Mar-2011
Author
K L Romm
J I Rossberg
A O Berg
C F Hansen
O A Andreassen
I. Melle
Author Affiliation
Psychosis Research Unit, Division of Mental Health and Addiction, Oslo University Hospital, 0407 Oslo, Norway. k.l.romm@medisin.uio.no
Source
Eur Psychiatry. 2011 Mar;26(2):115-21
Date
Mar-2011
Language
English
Publication Type
Article
Keywords
Adult
Aged
Anxiety Disorders - classification - diagnosis - psychology
Factor Analysis, Statistical
Humans
Middle Aged
Norway
Phobic Disorders - classification - diagnosis - psychology
Psychometrics
Reproducibility of Results
Self Concept
Self Report - standards
Social Environment
Social Isolation
Young Adult
Abstract
Social anxiety is a common problem in psychotic disorders. The Liebowitz Social Anxiety Scale, Self-Rating version (LSAS-SR) is a widely used instrument to capture different aspects of social anxiety, but its psychometric properties have not been tested in this patient group. The aims of the present study were to evaluate the psychometric properties of the LSAS-SR in patients with first episode psychosis, to investigate whether it differentiated between active and passive social withdrawal and to test which clinical factors contributed to current level of social anxiety.
A total of 144 first episode psychosis patients from the ongoing Thematically Organized Psychosis (TOP) study were included at the time of first treatment. Diagnoses were set according to the Structured Clinical Interview (SCID-1) for DSM-IV. A factor analysis was carried out and the relationship of social anxiety to psychotic and general symptomatology measured by the Positive and Negative Syndrome Scale (PANSS) was evaluated. Possible contributors to social anxiety were analyzed using multiple hierarchic regression analysis.
The factor analysis identified three subscales: public performance, social interaction and observation. All three subscales showed satisfactory psychometric properties, acceptable convergent and discriminate properties, and confirmed previous findings in social anxiety samples. Self-esteem explained a significant amount of the variance in social anxiety, even after adjusting for the effects of delusions, suspiciousness and depression.
The study shows that the LSAS-SR can be used in this patient group, that social anxiety is strongly related to both behavioral social avoidance and to self-esteem. The results support the use of this measure in assessment of social anxiety in both clinical settings and in research.
PubMed ID
21036553 View in PubMed
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6 records – page 1 of 1.